Unexplained pain finally DIAGNOSED!!!

I dont know if some of you remember, but a few months back I wrote a topic here about extreme unexplained pain that I had been having. My docs threw around a bunch of things it might be and had settled on "opioid dependency" which was absoloutely ridiculous for me because I am the type of person that will sometimes go through pain just so I dont take painkillers..so I DONT get depended. Anyways, I had a whooooole conversation with a buncha ya about that and turns out - thats NOT what my pain is from!
I was hospitalized - FINALLy for all the extreme pain I was in and after a bunch of tests, they finally just diagnosed me with FIBROMYALGIA !! I know, its just a way of docs saying "I really dont know what you have cause we cant find anything in your tests so this is it." But, Fibromyalgia is no joke. I go through EXTREME amounts of pain. I cant function without painkillers right now - "MS Contin" twice a day, and "Oxycodone" for breakthrough pain (which I have a lot of right now).
Another thing - my GI docs took advantage of me being in the hospital, and had me scoped. The biopsies actually DONT show that I have Crohns Disease as of now. It shows Pouchitis along with my bit of Colitis left (I've had my colon completely removed). But my doc says that for now, with my symptoms, that STILL does NOT rule it out completely. I'll cross that bridge when I come to it.

Anyways, I'm not doing well with this at all. The meds dont help yet, I'm in the process of transitioning betwen peds and adult docs and I just dont have one reliable doc I can turn to right now...I'm just so confused...about EVERYTHING! Does anybody have Fibromyalgia? Do you go through extreme pains and whats done about it?? I would appreciate ANY advice right now. https://www.healingwell.com/community/emoticons/confused.gif

Thanks so much,
Joslin

Yes, I definitely did Ivy. But i had no idea that that had anything to do with Fibro. I have an auto-immune dissorder. Cause of that I've had Ulcerative Colitis, Polyarthritis, Anxiety Disorder, and now Fibromyalgia. I just keep getting more and more things to deal with - more diagnosis' , more diseases!! What do I do to STRENGHTEN my immun system??? Is that even the way to go??
Thaks,
Jessi

Thanks for that Ivy..a little confusing hehe but SO interesting and definitely a lot to take in. I don't get it..I thought that BEFORE any of my illnesses started - and I've been told this by the docs - waaay back when I was first diagnosed with UC for example, I had an Auto-immune dissorder FIRST which they explained to me like this: basically, the good cells-my white blood cells-were fighting against each other, a battle, in my immune system, and of course while they were busy doing that, an illness developed in my body and the cells that usually help PREVENT illnesses that come into the body, did not do their job, basically. And so I thought thats how its been happening to me - sort of like flares of that happen every so often and I develop something else - like my arthritis, or asthma, and especially - my Fibromyalgia! Does this make any sense..? I'm so confused. And of course i know - and have been told over and over again - that everything is one big cycle as far as after having Colitis my anxiety developed, and the anxiety of course exacerbates the colitis, and again and again and again...

I happen to know that a lot of fibromyalgia patients are using LDN, low dose naltrexone these days, and they have improved so much they have no pain left. This is a fight within the immune system as you say, and it's easy to get more than one autoimmune disease when having one. LDN could calm down all. To learn more, you may go to this doctors site:
http://jeffreydach.com/2009/04/13/low-dose-naltrexone-ldn-2-jeffrey-dach-md.aspx