ER visits

(((LMills)))

What did they mean, a large build-up of fluid? Where is the fluid?

Ivy.

Apparently it is stuck around the ileum..I have most of my problems there anyway. Am feeling so much better right now, but I'm also a little funny from the morphine! Just bloated, but I think that will pass soon. No pun intended.

It took me forever to write that haha...thank you guys by the way. Your kind words and good vibes are definitely working!

I'm sorry you were having such a bad day. Having to go back up on Pred can be super disappointing (after all the time it takes to taper down), but with any luck it'll have you feeling better in no time, so it will definitely be worth it. At least the CT didn't show a lot of inflammation, so hopefully things will stabilize quickly.
The only time I've been to the ER for my Crohn's was this fall when I had C. diff in the middle of a bad flare, was in unbelievable pain, having trouble keeping down anything (including the antibiotics for the c. diff), and just getting worse. In the ER they put me on morphine and IV flagyl. They admitted me basically right away, though, gave me a CT (lots of inflammation), and wouldn't let me leave until the c. diff was gone. The worst part was having to wait for like 2 hours in the ER waiting room while having the worst pain of my life. Of course I waited until I felt like I was dying to go in (which also meant it was the middle of the night). I almost kissed the ER nurse when he finally gave me some morphine.

about the inflammation, I was thinking the same thing. Apparently the build up may be an indicator of inflammation building up soon if I'm not careful though. Possibly?..makes sense that way in my head anyway.

lena-I agree about the morphine. I wanted that so badly. I can live without pain killers, but today was definitely the exception.
And the waiting in the ER...before I ever went I just assumed you were always rushed right in, but last year definitely told otherwise. Thank god for good medical staff once you get in though!

I'm wondering where this puts me in the likelihood of having to get surgery though?..

One time I had what I thought was a blockage (felt like one), but the ER said something along the lines that my iluem had shut down. Is that close to what they said you had?

Lena, I know what you mean! After the many long and painful ER waits, I too wanted to kiss the nurse that finally gave me morphine!

Ah, okay, the nurse called today and ordered an ultrasound to be done tomorrow morning to rule out ovarian cysts, but at this point they don't know what it is.
There is just fluid build up, and it feels like there is just something inside of me. Like if someone just put any object in the abdomen and there was that uncomfortable feeling when you move around.

I won't know for sure obviously, but does anyone have any experience with anything like this?

I am having BM's so it's not that peristalsis completely failed (if that is even a possible) or that it is a complete obstruction. I just feel full but not in the way that you have just eaten...

Speaking of which, am on a liquid diet again hah! It seems harder to find something to eat than before. i don't know why. If anyone has any ideas I would be really grateful. Right now I am drinking kefir and soymilk. That is about it..

Yes, I am using the SCD as a basic guideline but am unable to follow it strictly due to insufficient time, funds, and energy...someday when things get a little better (do they?..).

They said either it is either/and because of a forming obstruction or ruptured ovarian cyst. The latter because of the amount of free floating fluid the CT scan showed in my abdomen.

In other news, they wanted to confirm this with an ultrasound so I went in and found out my insurance had reached the end of its term. It would have been nice to know this before I went in. Or you know, so I could have refilled my omeprazole as soon as possible.

The only who knew when this could happen was (surprise!!!) my dad. He knew I was in the ER too, but did not call. Yes, he is back in the states. No, things are not any different. Except that we communicate even less and he seems to care even less.

Should I be taken aback? I am a little, but I wonder too if I should have seen it coming. Is it so much to expect a 'hey how are you doing?' phone call?..

Yes, I know I am whining a lot, but even if he didn't call to ask how I was doing it would have been nice to know I didn't have insurance..

Wish me luck in everything else I suppose. I don't know what this next couple months will be like, but I am going to be optimistic.

I totally agree..it's hard not being able to have a definite plan.

And I think in the back of our minds, as much as we try to be positive, there is always that voice pleading 'please, don't ever let me be that way again.'