My GI appt. has left me a bit confused HELP!

Good morning all.  I went to my GI yesterday and am still trying to process everything he said to me about my desease.  He said that the pain I feel on my right side is probably always going to be there and won't go away.  He believes that it is possibly a sensitive spot that as my food digests well....hurts.  I can live with pain,  yet I was really hoping that it would not be a constant in any one area.  The good news was that my CT scan shows healing in my intestines.  I was very relieved to hear that.  I am going to try going off the endocort again and am a bit worried about that.  The last three times I attempted this my SED rate shot way up. I guess I am confused because of the pain that won't go away and my still having quite a bit of pain.  Is there anything anyone does for this?  I have tried walking and will continue to do so--I don't make it very far, but I go.  I know that is the important thing.  Also, since I am healing why is there so much pain still? Thank you for reading.

I am sorry you are going through some conflicting issues.  I completely understand.  It's frustrating, because you know there's something wrong because you are in pain, but it seems that all your labs check out.  I'm in the same boat, unfortunately.  But your GI is right... you will probably always have problems in a certain area.  My "problem area" is in the LRQ as well, and I know when I eat something that is difficult to digest, because I feel it!  Also, I had an abscess in my psoas muscle (connects from the vertebrae to the front of the thigh), and I have tinges of pain from time to time in that area.  It really jars things when I'm walking as well, so you are not alone.  Like Nanners, I use a heating pad occasionally, but since I experience such lower back pain as well, I generally take a really hot bath and relax.  It helps!  From time to time, I do need some pain medication, but it isn't chronic.  I hope this helps.

I agree with "CrohnieToo". You shouldn't have pain ALL the time. When I was on Pentasa, I took 4 pills 4 times a day. I currently take 3 Imurans a day. The pain shouldn't be constant, especially if the ulcers are healing. Even when I'm in full fledge crohns mode, I'm not in pain all the time. Personally, I think you either need a new GI doc or at least get a second opinion. Hang in there, eventually the right doc will figure things out and get you back on track.

I'm another person who's been told I'll have pain all the time...

What are you eating, HM? I am wondering if a low residue diet might put less pressure on that tender area. A properly balanced liquid diet might help too... but perhaps your doctor wants you to keep trying to eat normal food. It'd be good to have a conversation with him about that.

HM is your pain like a crampy pain? If so, you might ask for something like Bentyl. It calms the spasms your bowel is having. Another med that might help is Ultram, it helps the pain but doesn't cause the drowsiness. Good luck and big hugs!!