Crohn's and nasal sores

I get these too. I never related them to Crohn's though. They are so painful and last a long time. I sure wish I knew a way to make them go away faster.

My PCP told me it was due to the dry air(winter at the time I spoke to him) - it is now humid like crazy and guess what? I still have these nose sores. They haven't gone away since last September. I told my new Gastro about these sores and he said he had never had a patient complain of these. I wonder?

I, too, get these off and on.  My GI doc tells me they are common for Crohns people.  They hurt and ooze and generally I just use a good antibacterial cream and they eventually go away.  I'm working on getting rid of one as we speak.

I know that nose sores and mouth sores are part of crohn's.Mine would happen every time I had
a flare. My primary care doctor told me what they were not my G.I. doc. My primary doc.
would do swabs and they always came back negative for herpes or infection. One of the good things about this web site is you find that other people have a lot of the same issues going on but your
doctor will tell you they have never seen this before or it is uncommon. I have always had sinus
problems and I read about a study that was done that made a connection between sinus infections
and crohn's my doc. did not know anything about it. When I had my colon removed my sinus
problems went away. I think we need to do a poll and have our own list of issues that we all have
experienced. Doctors really know very little about crohn's and colitis or about the drugs they give
us.We don't know what the long term effects of humira and remicade will be. Look at all the drugs
everyone on this site is taking or has taken. Most of this stuff in combinations could be destroying
our liver our bones and our kidneys. I have a friend who is a G.I. doctor and he said he would
not take some of these drugs but he gives them to his patients because he said the truth is he
doesn't know what else to do. I think there has to be a better way to process all this information
for all of us and to have better treatment options that are based on real patient responses not the
drug companies clinical trials because there trials only report what they want.

Well said, Fruitcake. It's encouraging that science is progressing to help people with certain debillitating diseases, but you're right- we really don't know the effects of these drugs we are taking. Most of us will do whatever it takes to achieve some sort of "normalcy", to be able to function in society without pain, nausea, fatigue, restroom-runs, etc. It's very important to do as much research as possible before starting any medication, because you know your body better than any doctor.

I get cold sores on the outside of my mouth.  The sores I'm referring to are inside of my mouth and they aren't cold sores.  They are more like canker sores but I do believe they are Crohns related. 

I get nose sores too. I always wondered why I got them, but now thinking about it, I do get them more when I'm flaring. Any time I get a sinus infection, I get them also, and put them neosporin in my nose a couple times a day. My PCP has commented on them and suggested the neosporin, but never said anything about them, so I just assumed everyone got them from time to time.

Hi All:

NASAL SORES R US...

I'm new to the site as of this moment. 

Having just read the list of comments posted about nasal sores and Crohn's, I want to quickly share with you my diag-noses.  Ha!  No pun intended.

In 1982 I was first diagnosed with "acute severe ulcerative colitis".

After a number of debilitating episodes requiring long hospitalizations, TPN, blood transfusions and drug experiments, I managed to get the colitis under control with lifestyle changes I will explain later, not tonight.

My reason for writing today is that I too have suffered with these nasal sores that flare and subside, each flare different, some very aggressive, painful and spreading over larger areas inside the nose, and out.  The sores show up in my mouth.  These nasal and mouth sores plus other symptoms and illnesses including arthritis eventually led to a diagnosis in 1998 of Primary Lupus with Secondary Sjogren's.  Some of you may find answers researching these terms.

It's after 3am and I must shut down for the night.

Bless you all and thank you for sharing your stories.  Very helpful and appreciated.  To be continued...

Sincerely,

lululupus 

I get these sores too. I usually have to get on an antibiotic to get rid of them. I have noticed mine usually come before a flare.

Thank you so much for all of your responses on this subject.  I have been a Crohn's patient for over 33 years and have experienced nose sores for over 5 years.  I have traced the cause to Humira, CimZia and Remicaid.  When I can stop these drugs, my nose clears up completely.  I have used neosporin to ease the pain and have taken several doses of antibiotics, which will clear it up temporarily but the sore always come back especially after an injection of the aforementioned drugs.  The ENT doctor did a cat scan and told me my nasal cavities were clear and that he did not know what was causing the sores.  Now I am experiencing symptoms of the Crohn's however, I refuse to take any more of these injections, which I am now certain are causing the nose sores.  I have read other articles on this topic and am going to try some other remedies including Bactroban, which I have not tried and swabbing the nose with peroxide, which I found helped someone else.  My point is this.  The doctors are so interested in selling drugs, they don't care about the side effects.  Is anyone else as sick of doctors as I am.  The only time I do well without the poisonous care of a doctor is when I am eating a gluten free diet with plenty of fresh, preferably organic vegetables and drinking a lot of water.  I will report in about one month on my progress off of these drugs and on a strict diet.  Believe me, I have tried everything and this is the only way to bypass the symptoms of Crohn's Disease.  Maybe I am wrong, but we'll see.  I am putting this to the test again. 

My PCP prescribed an antibiotic gel that I'm supposed to use twice a day in my nose when I get them. They still hurt, but they go away quicker than if I didn't use anything. It's called mupirocin (sp?). I used it also when my incision got infected. They said only to use it when I need to because it's strong and they don't want you developing a resistance to it.

Don't pop them...I've tried to scrape them to get the fluid out of them and it just makes them scabby and worse!!