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Fever reducers for crohn's patients

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Posted 8/12/2009 2:21 PM (GMT 0)
It's that time again - my husband is right now getting his 8 week remicade infusion. Normally after he's done with the infusion, he gets flu like symptoms for about 24 hours. High fevers, chills, muscle and joint pain . . . basically he's miserable. Tylenol doesn't even bring down his fever all the way, and he struggles through it. He's allergic to asprin. I've just taken to giving him tylenol every 4 hours, to try and keep the fever from spiking really high. I've measured his temperature at 101 after taking tylenol.

The only other pain and fever reducers that I can think of all are NSAIDs like ibu-profen, naproxen sodium, etc, which are not advisable for people with crohn's. What should I do? The tylenol barely makes it bareable - should I just tell him to take the nsaids in conjunction with tyelnol, it's just a couple of doses after all . . . ?

Any advice on how to make my husband more comfortable after his infusion without causing bleeding issues? His crohn's is in remission, and he's doing fine right now.

Thanks for your help.

PV
Posted 8/12/2009 3:01 PM (GMT 0)
Cool compresses on the forehead. Just a single sheet covering him. Drinking cool liquids. 

It's great that the Crohn's is in remission. Don't use ibuprofen...it's not worth the risk of riling up the intestine.

Posted 8/12/2009 3:41 PM (GMT 0)
I agree for the most part with njmom. But........on occasion when I have a headache and Tylenol will not relieve it, I will take one Ibruprofen. I do not do this often, but only in those bad times. I think if you keep it to a rarity of just one once in a blue moon, it is okay. But no more than that. JMHO
Posted 8/12/2009 3:48 PM (GMT 0)
I know whenever I get a migraine, the only way to get rid of them is with some otc migraine medication which is composed of a few different NSAIDs. While it's probably not the best for my Crohn's, you gotta do what you gotta do.
Posted 8/12/2009 9:31 PM (GMT 0)
I asked my GI when I first started seeing her about NSAIDs. She said in general you should avoid NSAIDs, but even she wouldn't suffer with a bad headache or menstrual cramps just because of worrying about whether or not to take medicine.

I completely understand the remicade side effects though. When I was getting infusions, I would get home and immediately take Tylenol so that I wouldn't have a high fever. Even with Tylenol I still would have a mild fever, but I only had it for a few hours.

I'd probably ask the dr before the next infusion what else you could do to help combat the fever and side effects also. Maybe they would know what to do.

Good luck!
Posted 8/12/2009 9:59 PM (GMT 0)
A tea made from balm leaves can help induce perspiration and bring down a fever. I don't know if you can buy balm tea, though: you'd probably have to buy& grow a plant yourself and work from there.

Peppermint tea can also help, though it's not quite as effective as balm.

As always, check with your pharmacist, doctor etc about interactions and side effects...
Posted 8/12/2009 10:21 PM (GMT 0)
Are they pretreating with benedryl?
Posted 8/12/2009 11:13 PM (GMT 0)
Yes, both IV benedryl and 40 mgs of solumedrol. I just made another post, because it seems to me that his reaction is getting every so slightly worse each time. Again, it's not like he goes into shock or something, but his fever that isn't controlled very well by tylenol, and his body aches and pains still knock him out for about 24 hours after infusion. Makes me feel so bad for him.

I do wonder if this means we have to try a different drug, like Humira instead of Remicade. I guess we'll try to get an appt with his doc before his next infusion to discuss.
Posted 8/13/2009 2:18 AM (GMT 0)
The only thing that can relieve a headache for me is ibuprofen.
I am allergic to aspirin (it makes me faint) and tylenol does absolutely nothing for me, I might as well eat an M&M. I find if I can take 1-2 Advils at the first hint of a headache, I can usually halt it from progressing and requiring more ibuprophen later. I take it with some milk and maybe a slice of bread/toast.

Also, sometimes I know an incipient headache is due to hunger or dehydration and if I can eat/drink right away I can avoid the headache and need for advil.
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