Infliximab and weight Question

So far I've put on close to 40 lbs in a little over a year. Sometimes it's so sudden, that my skin hurts from being stretched. I'm quitting after my infusion on Thursday.

I only get infliximab episodically (so one dose when I flare which can be once every 6 months-3 years) but I always gain about 6 pounds very quickly (first week or so and then slowly a bit more) but I always thought that maybe it was down to water weight or something from the steroid they give beforehand and the combination of feeling better and absorbing more nutrients etc. I usually need the weight gain though at that point as when I flare I lose 7-14lbs a week! As I don't get it regularly I don't have to worry too much but I wouldn't want to be gaining half a stone with every infusion if I did have it regularly - I'm only little!!

I have heard a bit about this and would like to know exactly how many crohnnies have gained significant weight on infliximab ….. Because the stories seem so varied, only recently have I heard about this weight-gain factor!! I am slim but want to stay that way thank you very much!! J   Could the 25% be attributed to those chronnies who are underweight and need the weight and thus gain once they are healthy again, eating properly and absorbing nutrients? How many of you out there have not gained significant weight on infliximab? Does it happen to everyone?

Yeah, I'm not real happy about the weight gain. I wanted to put on some pounds but not this many! I went from a size 0 to currently a size 10. I've had to buy new clothes every couple of months. The bad thing is, I haven't changed my diet at all. I tried to start eating healthier but I still can't tolerate any fruits, vegetables or whole grains. I've tried to work out but the joint pain from the Remicade is so bad, that it makes me not want to. If I walk on the treadmill for 20 minutes, my feet hurt so bad for the next couple of days that I can barely walk at all. I can do yoga but that doesn't burn a lot of calories. Hopefully I'll drop some weight after I quit.

so EVERYONE gains weight on remicade???? Why is this not reported by Gastros???

There are a few other threads addressing this question and lots of people saying they have been on remi for years and not gained any weight.... so i guess it really depends on the individual, and whether or not they're also on pred ..... in the side-effects (online) it says weight gain is an uncommon side-effect..... I'm sure it must have some correlation with people's insides absorbing more nutrients, increased appetite from better health etc..... but who knows, maybe it does cause weight-gain, its just werid that its not a listed common side-effect if so many people seem to have gained weight. Though maybe those who haven't aren't speaking up. This is confusing!

I gained 40 lbs while on Humira. I went from a size 6 to a 12. I lost 20 lbs immediately after stopping it, but the last 20 lbs are still there. I was back down to a size 8, but recently being on prednisone I am back up to a size 10. I am now on Cimzia. While on Humira I maintained my healthy diet (about 1400 calories a day, all organic). I also worked out a lot because it did help my Crohn's Disease and my fatigue. I was working out 5 days a week. Some people gain weight on these meds and others don't. I am noticing the same water retention issue on Cimzia that I had with Humira. I wake up and my hands and face are swollen. That is how the weight gain started with me on Humira. I think some was water weight and some was actual weight. 

Over from OC board. I have gained 20 lbs since starting remicade in November.