question for SCD dieters

I have considered trying this diet for my diet, should her symptoms get worse... Would be very difficult since she is only 9 years old. I am familiar with the diet tho. My son (no Crohn's) has autism and I have been reading about this diet and its potential to help children with ASD for years. I have friends who have done this diet for their ASD children. It helped significantly with their bowel issues.

Not only the links Emom provides, but in our Crohns Resources above we also have links discussing Crohns and diets. I myself follow the low residue diet and it work well for ME. Good luck!

Yes, you are right. In general, beans are illegal on the SCD. Elaine does allow certain beans such as navy and kidney beans if prepared as explained in her book, and ONLY if you are symptom-free.

What kind of beans did you eat?

When I was checking a couple of things to answer you, I ran across this from Wiki. Scroll down and read what it says under "Toxicity". I never knew!!! You didn't soak or sprout kidney beans, did you???

http://en.wikipedia.org/wiki/Common_bean

No i didnt have kidney beans. I know they are poisons. I had lentils actually. Today ive now eaten all fruit and feel great no pain only been to the loo twice. I know im doing an extrem diet, but there are alot of people on the raw foods line who have chrones or uc. I seem to be able to handle a fruitain diet. Although i do eat fish occsionaly. I also eat lots of greens, and some nuts. Mooby Doo the raw foods diet may be too extreme for a 9 year old, but you can take some ideas. i pesonaly would have let your child do the scd as she may become malnurished if not. It seems to be that ibd people or at least what ive been learning now, can not digest complex carbohydrates. Also refind food is a problem. There are alot of raw food ice creams that your daughter could have, and they are healthy. Ice creams are not healthy for any one, even with out ibd. There are also raw food cakes you can make. Its a complex diet to learn but fruit and veg have all the vitimans iron amino acids you need. I now wish I was brought up on a healthy diet. Ive always had problems with dairy products. I wish your daughter the best. I wish this awful desiese did not happen to children, i think its unfair. Sorry i dont have time to spell check.

Ok keeper thanks for your info. I havent seen any blood or mucus since being raw, but now i have seen some blood. so im looking at the scd diet and waiting for my scd diet book to come through. Ive felt so much better on the raw foods diet though, what ive expericed is more energy, better blood tests, better eye site, and no bleeding when me and my husband have it on, (i used to get that which is another sign of something wrong) its a shame that i have not seen any sign of blood until now this morrning. well its a shame that i saw blood. the other thing im wondering is why then does david klien and paul nison claim the raw foods diet works. Thanks for all you help on this line. i got alot of grief for exressing this on the uc line.

Hellokitty, I will tell you that if "I" ate that raw food diet, I would probably wind up in the ER. I have the stricturing (scarring) type of Crohns and I would for sure end up with obstructions and major pain. I personally think at least for most Crohnies, its best for us to follow either the SCD type diets or Low residue diets. I think these are gentler on the system. Many of us cannot eat raw veggies at all. Though can I say, we are jealous, I would love to chomp on a big salad:) IMO

Dont worry im not suggesting any chrones people do the raw foods diet. I suffer from UC. the self healer david klien and paul nison had uc as far as im aware. At present i do not have chrones or as far as I know. I know how serious chrones is, well uc is pretty serious too, my weight drops really easily. Im only asking about SCD as i tried the raw foods as i cant tolerate alot of meat. The scd diet tough should let me know what i should and should not eat. I have bought the book but has not arrived yet. no one on uc line is doing scd i asked. well it was dumb of me to eat the lentils especially raw. its my own fault i got bleeding. i was doing really well and had none for ages, for the entire 3 months form when i stated. i freak out when i see blood it scares me.

Welcome!!

Thank you! Unfortunately I've embarked on this journey many many times. I was diagnosed 6 months after my second baby was born. Spring 1999. I had noticed some light bleeding. (I was on Immunoglobulin and 65 mg. prednisone during my pregnancy because my fetus had no platelets) I had no idea what colitis even was. The surgeon who did my colonoscopy told me I had it over the phone, called in a cortesteroid enema, and I never heard from him again. I almost hemmoraghed to death - the nurse told me to try it one more time - same thing. I found the diet 5 months later (and several drugs later). I stayed on it for 5 weeks - stayed in remission for 3 lovely months (while eating anything and everything) but of course it came back. I have tried all the drugs and 8 specialists 1 who wanted to remove my colon (I had only had this disease for 6 months.) All say eat anything you want. I know the diet works. I am giving it a whirl again after being on an antibiotic for an unrelated thing and it has put me in the WORST flare ever - I could not live like that so I am determined to try it again. The first 7 days are the worst (with the die off of many unpleasant hosts in the body). I think if people can stand the first little bit it's worth it! Anyone else tried this longer than a few weeks?

I have no idea whether it's true or not, but one former SCD poster here said he'd read that it takes a minimum of three years of "fanatical adherence" (Elaine's words) to the diet for maximum benefit... All of my son's blood work returned to normal after about 9 months on the diet. Now, two years after starting the diet, he still follows it very closely, "cheating" only when we were on a family trip this summer.

Yes, my son's docs also told him to eat anything he wants...

As I may have mentioned earlier, there are followers of this diet who have come and gone here... You might want to check out/join the BTVC-SCD yahoo group. They are a large, supportive group of SCDers! Of course, there's lots of support here too!

It could be from toxins the bacteria/yeast release when they die. According to Pecanbread (http://pecanbread.com/p/how/temporarysymptoms.html), the following are things that can happen as your body detoxes:

* Flu Like Symptoms
* fever
* extreme hunger
* nausea and vomiting.
* dizziness
* achy joints and back
* change in bowels (diarrhea or constipation)
* strange skin rashes
* runny nose and funny cough
* headaches
* behavior changes/irritability/tantrums/short tempered
* sleep disturbances

Personally, I get the skin rashes when this happens. Things that can be helpful during these times are taking epsom salt baths and drinking green tea. The baths would be especially good if your joints hurt.