Update on Me

My remicade was increased from 500 mg to 1,045 mg to 1,060 mg. From 8 weeks to 6 weeks to 4 weeks. Did colonscopy and Catscan in June.

I finally have my answer about surgery. I was told yesterday I'm having surgery in less than 2 weeks. I meet with the pre-op nurse next week.  I was mad because I been waiting on answer. Now I'm scared because the answer is yes. 

 

Thanks. Just nervous because they didn't tell me much. I just know I'm going to be cut wide open, which longer recovery. I am guessing the pre-op nurse will tell me everything. I am scared of being put under.

Good luck with surgery!!

Best wishes for a speedy recovery. Take Care.

Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..Bulging Disks, Pinched Nerve..MEDS--,Purinethol,Folic Acid, Fish Oil,Remicade,Bentyl,Anamantle Cream,Cortifoam ,Tramadol, .and many more. 26 meds..

Rockonbelly just think of how much better you are going to feel after your surgery. Praying this leads to a long long remission. So how is your sister going to take care of her kids now??? Now maybe your family will get that you really are very sick. I know my first resection which was done on a emergency basis, really opened my families eyes. Sending prayers your way.

Hugs
Gail*Nanners*

Thank yall for your kind words and keeping me in your prayers.

 

I'm home. I was in the hospital for 6 days. Surgeon said I was almost completely blocked. They took a part of my right colon out. My staples go straight down the middle; from top to bottom. My staples comes out Friday. The meds they put me on in the hospital made me itch. So I had to take Benadril with them. The clear fluids diet made me sick: popsicles, broth, juices, and jellos. Don't they know that's too much citric acid at one time? Just wondering when it will stop hurting to sit straight up. My back hurts when I lay flat, so I dread when it time to go to sleep. I put pillow after pillow. Any tips?  I might sleep in the recliner tonight. Mom and Dad been really helpful. Especially Mom since she stayed with me in the hospital.

 

I need help with food. I don't feel like eating. Will finish at later day. Dopn't feel good now. Bye  

Yes Rockon do sleep in the recliner if you think that will help. I was wishing for one myself after my resections. I am a side sleeper and had the hardest time sleeping on my back all the time. When I got home I stayed on really soft diet for awhile until my bowels adjusted to the change. I ate things like baked chicken with mashed potato's, toast and scrambled eggs. Soft stuff like that, hope that helps a little.

Please do remember that you just had major surgery, and rest when needed. I know I had to use my pain meds for about 4-5 weeks after the surgery. Try to walk a little everyday to help build up your strength. I kept wondering why it was taking so long to recover (really wasn't that long) and my sister kept telling me to remember they went in there and were moving stuff around and cutting, so its going take awhile to recover. Be gentle with yourself. I hope this leads to a long remission. Has the doc said anything about what maintainence med you will be using now that your surgery is over? Please do get on something. I didn't after the first and ended up having to have another 3 years later.

Big Hugs
Gail*Nanners*

oh yeah LOVE YOUR QUOTES... shake left handed.. just tried it and it through the person way off..made me smile...thanks