Burning sensation in hands

That sounds a lot like neuropathy. Neuropathy can be caused by medications (I don't know anything bad about your meds though) or by any of a few illnesses - but not Crohn's as far as I know. It can also be a serious B12 deficiency. You should talk to your doctor about this soon - it can be permanent if it is not stopped.

sounds like Reynaud's syndrome..do you have Lupus?

Hey frogeleita, luckily, I do not have Lupus. I don't think it could be Raynaud's, as my hands are not changing colors. The burning is all internal, so they're not getting red and do not feel hot to the touch. Typically my hands are always ice cold, which I've always attributed to just having poor circulation, which makes the heat an even bigger departure from normal.

Basically I keep expecting to turn into a character from Super Mario Bros and start shooting fireballs from my hands (which, I must say, would be pretty awesome!). :) At least, this is what I keep telling myself to keep thinking positively while not knowing what the @!%$ is going on in my body!

Has you doctor done a B12 level blood test? Chronic B12 deficiency (called pernicious anemia) can cause neuropathy and that is something that they can do something for. Also, B12 deficiency is not uncommon in Crohn's, so ask for a test if you haven't had one. It sounds like the kind of stuff happening with your hands is a later symptom of multi-focal motor neuropathy, so that sounds less likely at first glance.

Keeper, I don't think I've had my B12 tested in years, so I'll definitely bring it up whenever I see a rheumy. Back in 2007, I remember it being a bit low because I had a B12 shot. Of course, that is no indication of if it is low now or not. Also, my previous statement was not a suggestion that I have multifocal motor neuropathy, just a comment that since it is in the family, I wouldn't be surprised if I had one of the many kinds of neuropathy (assuming they are all connected). I've also had numerous occasions of extremities (toes and fingers) going numb over the last year, although when I mentioned it in passing last month, my doc didn't seem concerned.

Trish, I had a CMP (comprehensive metabolic panel) in August, which includes four tests for liver function, and I know the results were all normal for that.

My daughter woke up the other nigh,t screaming at the top of her lungs. I came running to her, she was saying mommy my hands, my hands are burning. She was in the bathroom running cold water in them. She was in extremely bad pain. She did have a heart surgery, but she is always giving a clean bill of health. She told me this morning her finger tip still burn. My husband said it has only happened once to just wait. My daughter thinks demons are trying to get her. IDK what to do? Does any one have any ideas?

Any health professional can run a B12 test, and in people with Crohn's this test should be a standard procedure, just like the CRP and ESR tests. There's no need to wait for a specialist. However, you might want to find a family doctor who is more willing to run a simple B12 test. 

Especially in cases of burning hands, one of the potential signs of nerve damage, B12 should be considered. Some of this damage might be irreversible. If you really are that deficient in B12, then it can be affecting your entire body, including your brain. This happens to be a critical vitamin.

I'd get that blood test today. Then I'd ask to have the B12 shot administered right after the test, rather than wait for a week to get the results - time, potentially, for more damage to be done.

B12 is perhaps the safest vitamin to take, so the shot shouldn't do any harm, and it is the best way to get B12 into your system, fast. Even people who don't have Crohn's are able to absorb only a small percentage of B12 vitamins.

Btw, IF the blood test is done, then any result below 400 should be considered as a sign you might be deficient.