I also have a lot of pain from having a cutting Seton that failed to take and three fistula plugs (over the past three years). Finally the surgeon has decided to use a silk Seton, which also cuts and causes drainage, bleeding, and pain. I can understand that it is hard to do the day to day task, even going down stairs causes pain and swelling. The incontinence issue is hard to accommodate for when I have to do a 10 minute sits bath after every movement, and twice more a day. How can someone work a job and do this? At first the doctor had me on two colace a day and now I'm take one a day.
My family doesn't understand why I can't do more to help out with extra things around the house such as loading the wood stove, and stacking blocks of wood or riding a lawnmower over a bumpy lawn with a Seton in place. So they judge me. I can definitely understand how someone could get depressed. They also don't understand why I don't go out and have fun. Who can feel like having fun with a full time major wedgie?
As far as ripping out the Seton. I have thought of that too, but the alternative is more staph infection and possible death if I kept the abscess. My abscess turned into MRSA that spread through my bloodstream because the one OBGYN did a procedure that she had no business doing. She
opened the abscess from the wrong direction and spread it. MRSA caused me to have fevers, and cold chills all the time, elevated blood pressure, low blood sugar, felt so cold that when it was 80 degrees outside I had a heater on. People would stare at me for wearing a coat in summer. I'm definitely glad to be finally feeling better and warmer.
I have had 11 procedures in three years. The first was for a large right ovarian cyst, one for my gallbladder which was diseased from a small hole in it, and 9 where for the fistulas. Hopefully this is the last.
All I can say is that I take one day at a time and do the best I can with the circumstances that where dealt.
Hang in there all those who have had Seton placed. They are a lot better then the alternative.
Post Edited (Crazywoman) : 6/15/2012 2:38:17 PM (GMT-6)