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Anyone NOT on meds to treat CD?

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Crohn's Disease
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Posted 11/20/2009 3:44 AM (GMT 0)
Hello.  I'm just looking for anyone who is not or has never been on meds to treat their Crohn's.  Just curious as to what people have experienced!

 

Posted 11/20/2009 4:45 AM (GMT 0)
I am one-day into being CD med free. I had a series of horrible flares that took Imuran to subdue. Since I am in remission, I decided I wanted to at least see if I can survive without any meds. If not, I'll just go back on the meds, but I figured trying is worth a shot.
Posted 11/20/2009 4:54 AM (GMT 0)
I went to no meds this last summer when my immuran caused me pancreatitis.  I was doing OK until August when I flared possibly due to a prednisone burst to treat a back injury.  I went on prednisone enema's and back on Asacol.  Now I am on Asacol and Blue dye #1.  

In my past I used to go off my meds when ever I felt good.  I am not sure that it is a good idea to go med free.

Posted 11/20/2009 5:44 AM (GMT 0)
Hi there,
I have had Crohn's for 4 years but was only diagnosed one year ago. My doctor wanted me to take steroids and biologics, but I was uncomfortable with the side effects. Instead I've used dietary strategies, probiotics, supplements and for a time, LDN. I'm now med free and, amazingly, symptom free. I'm 100% certain the diet I used is the key. I started out with SCD for 8 months but was only showing some improvement. I switched to a very card restricted diet and now have no no more D (had it for 3 years), no pain, no gas, no blood. It's amazing. the closest diet I've read to what I'm doing is in the book "Life without bread".
cheers
Posted 11/20/2009 6:23 AM (GMT 0)
I swear I thought I replied on this thread earlier???? I must be losing my mind!

Anyways, I'll breifly touch on what I thought I already replied here....I'm either allergic or non-responsive to tradtional oral RX, pred used to work but no more...so I had to resort to the natural anti-inflammatories of which I was skeptical about but pleasantly surprised when I found some relief from them (see my sig below).

My GI was the one that suggested I take fibre supplements daily and indefinitely and it was the best advice I've ever gotten from a GI and I've seen a few over the yrs, 18yrs of having this disease to be exact and only on and off pred a handful of times before it stopped working, not other oral RX, but some rectal meds on and off to treat my proctitis (inflammation of the rectom from CD).

Since I started probiotics, what seems like coincidence I haven't had to deal with any proctitis issues and it's been about 5ish yrs now of that, which is the longest I've ever gone in my 18yrs of having this DD.



:)
Posted 11/20/2009 1:00 PM (GMT 0)
pb probably did. This exact question is asked about once a week lol.
Posted 11/20/2009 2:41 PM (GMT 0)
See my message in your other post!
Posted 11/20/2009 3:10 PM (GMT 0)
hahaha!  Thanks!  I wanted to post a "general" question and then just in case, a more specific one about meds.  I know that I will likely be on them in 3-6 months ( the length of time the doctor gave me to figure my diet out before we go that route), and I know that I will live with this the rest of my life.  I'm just still trying to get a handle on this whole thing!
Posted 11/20/2009 7:11 PM (GMT 0)
Now I am only taking asacol and it is so not working my pain is getting bad and the D is more by every day.
Got my last Remicade infusion in end of august.
I get Humira in December so I don't recommend no drugs.
Posted 11/20/2009 8:57 PM (GMT 0)
Catpower I would bet money that you will be on here in the near future telling us you are flaring. The Imuran was more than likely what was keeping you in remission. Good luck, but I have heard this same story many times. JMHO P.S. I do hope I am wrong, but unfortunately doubt it.
Posted 11/21/2009 8:54 AM (GMT 0)
Well I was told I had IBS for almost 10 years. So all that time I wasn't getting medication, and at the end I ended up in the hospital. Almost bled to death. So I like to stay on my Asacol, just to help keeps things calm in there. When I do flare I've taken prednisone, then back to just my Asacol afterwards. I feel being on something is important, since I had many years where I THOUGHT I was fine, only to find out something serious was brewing up in there.

Some say they do great without meds, but a part of me always worries for them. Mine seemed to stay pretty quiet until a lot of damage was done.

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