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What crohns treatments worked for you?

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Posted 12/15/2009 6:12 PM (GMT 0)
Methotrexate injectable (2 years+)

zofran meltaways

folic acid injectable

b-12 injectable

cipro as needed...

Pred as needed...

Crohns is very individual, so I have some things that did not work for me:

humira-lupus

remicade-lupus

immuran-vomit comet

6MP-vomitting

mesalimane-vomitting

I tried the makers and SCD diet for about 18 months, but because I am a heavy bleeder they were not successful for me.

What has been your experience with what works and what does not work for you?

 

Posted 12/15/2009 6:49 PM (GMT 0)
The only thing that has worked for me is Remicade...and it is still early to say that it is 100% effective. 


Will power (mind over matter) helped for many years but eventually the body won out.

Posted 12/15/2009 7:29 PM (GMT 0)
So far nothing has worked for me. Going on some sort of trail drug (no idea of name) in January.

;o(
Posted 12/15/2009 7:31 PM (GMT 0)
The mesalamine meds and Pred have been my lifesavers. But the B12 shots, Probiotics and Vitamin D have really helped with my fatigue and fibro like pain. I am currently in remission and maintained solely on Asacol, B12 shots, Vit D, and Probiotics. Also take a Calcium Citrate supplement daily.
Posted 12/15/2009 7:33 PM (GMT 0)
Right now, I'm on prednisone and feeling better than I have since before I got sick. I just started 2 weeks ago tomorrow and am hoping to start to taper. I'm keeping my fingers crossed that I stay feeling so good!
Posted 12/15/2009 10:19 PM (GMT 0)
6mp has been the magic one for me -- no side effects, low dose, but then I have what is classified as a mild to moderate case. My GI has told me several times that this is the one condition he treats where he really has to trial and error various meds for different patients, since no two are alike. He does not have any "one drug" he uses in Crohns, has about 25% of his patients on 6mp, another 25% on Remicade and otjers for others.

Posted 12/16/2009 12:14 AM (GMT 0)
Remicade is the only thing that has worked for me..

But I had to stop so now I will see if humira will do the same for me.
Posted 12/16/2009 2:31 AM (GMT 0)
I was on Prednisone for awhile. Now I take Pentasa, probiotics, metamucil and colace. ( I tend toward constipation) When I go the other direction with severe D, a short round of Cipro helps. It's working so far, but I'm keeping my fingers crossed:)
Posted 12/16/2009 4:53 AM (GMT 0)
Sorry but since you asked: Asacol and Blue Dye. Also: Watching what I eat, fish oil, tumeric, Vitamin D, and PB-8.  I had succes with prednisone but it has it's side effects and lost potency for me.  Rowasa helped in the past as did cort-enema.  Immuran worked but OMG my poor pancreas..........
Posted 12/16/2009 4:56 AM (GMT 0)
Humira was the only drug that really worked for me (without making me feel like crap). Eating SCD helps even more then Humira, and I also supplement with things like fish oil (see signature). I'm about to start LDN, and in conjuction with SCD and Pentasa, hope it keeps me from needing surgery ever again.
Posted 12/16/2009 1:34 PM (GMT 0)
Pentasa for many years (works better when i actually take it). B12 injections, Vitamin D and folic acid are what make the every day pains more tolerable and the tiredness less invasive. I have had a few rounds of pred, but nothing too long term. Going to give probiotics another try in January.
I have not gone into any of the "bigger" meds because I feel my quality of life is good enough to not risk the side effects or reactions I might have---I tend to react oddly to meds.
Posted 12/16/2009 2:39 PM (GMT 0)
I just started Humira, what systems did you get that showed up for Lupus?
Posted 12/17/2009 12:24 AM (GMT 0)
Remicade has worked for me in the past and now I'm on it again and it seems to be working. Steroids worked and I'm on entocort right now too. Humira didn't work for me and I was on it when I had my latest worse flare ever :( Good luck to you in finding something that works.
Posted 12/17/2009 3:17 AM (GMT 0)
Entocort and Methotrexate slowly over a year put me to a place that was much better along with sticking to safe foods and positive thinking.
Pentasa -allergic
Imuran -pancreatitis
refused pred
cipro/flagyl made me sicker than the crohns
Posted 12/17/2009 11:35 AM (GMT 0)
Initially pred "worked" for me but once I was weened off the drug it was just a matter of time before I flared and was back on it. Over the years I think pred just masked the problem and in the meantime I was building up scar tissue from flaring in between. Entocort helped for awhile but even that is starting to subside in effectiveness. Now I'm on Humira and am feeling better but I only started a couple weeks ago so we'll see where this takes me.
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