Posted 12/9/2009 1:11 AM (GMT 0)
that's kind of what I read about side effects. I mostly just wanted to confirm with everyone else. My sister is a physician and a pharmacist and that is what she thought too.
I think that you are on Remicade infusions for a while is my understanding. It sounded like if you are doing well you can space the treatments out or push them closer together based of whatever it takes to get you into and keep you in remission. I'm like a lot of other people - I am willing to put up with it as long as it works and so far it has.
So for background.... I will also admit that I was never very good at altering my diet to accommodate my disease. I mostly lived in denial until I got to the point early this summer where I had a stricture so tight my GI couldn't even use the pediatric scope to get past it. He thought he perfed it and we had all kinds of drama and that got my attention - finally. I have been very compliant since then. I went on a 8 week course of prednisone and lialda. We added immuran to it and that seemed to work but I just couldn't take the side effects of pred (mood swings, weight gain - ugh) and begged to get off it. But that didn't really seem to last very long. So when faced with returning to prednisone, I decided to give the Remicade a try.
I am down to about 4, maybe 5 BMs in the morning - I have about a 2 hour window in the morning. Sometimes more, sometimes less. Intake makes a difference for me. Morning was always my bathroom time. One thing I have noticed is that red wine is no good. White is ok for some reason. (It IS the holiday party season, ya'll) I've pretty much cut that out except on the weekend - as much as for the calories as anything else.
Sorry for writing you back a book.