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6 year old with Crohns

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Crohn's Disease
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Posted 1/15/2010 11:54 PM (GMT 0)
Trains03 Hi everyone. New member. My son is 6 and is my hero. He was diagnosed with crohn's at age 2 months. It has been a very long difficult road but my son is so tough and brave he has taught me so much. I was diagnosed with UC Jul 07.

*gave your post a title, so you could get more responses*

Post Edited By Moderator (Nanners) : 1/16/2010 7:11:08 AM (GMT-7)

Posted 1/16/2010 4:16 AM (GMT 0)
Hi & welcome. It's so sad to here of little ones having to suffer, but it seems you have a little fighter....
Posted 1/16/2010 4:43 AM (GMT 0)
That's the youngest diagnosed age I've heard of...poor little guy. I can't imagine how tough things for you and him have been.

Welcome, and I'm glad you found HW.

There are a few other moms here who have young kids with CD.
Posted 1/16/2010 1:05 PM (GMT 0)
Hi and welcome aboard! sorry to hear your young son has this disease and yourself also but you have found a great site everyone is so friendly and supportive I have found out so much info on here, hope to see you posting in the future Bev x smilewinkgrin
Posted 1/16/2010 2:10 PM (GMT 0)
Hi train and welcome to HW. I am so sorry to hear your little one suffer with Crohsn and yourself with UC. It must be very challenging for you sometimes. You definetly have my prayers. How is your child doing now? Is he Crohns under control? How are the treating him right now? Sorry for all the ?'s just curious to know how the baby is doing today. Also there is a site for parents with young children with Crohns also, it is called dragonpack.com/IBD, you might want to check it out also. Good luck and we look forward to hearing more from you. Hugs!
Posted 1/16/2010 2:53 PM (GMT 0)
Hi Trains03. My daughter is 9 and was diagnosed with Crohn's last year. Terrible, this disease.  Bad enough when it hits adults, but when it hits kids we have the additional concerns about stunted growth and pyschological impact throughout their younger years.  Angers me, actually. Why my child? Why yours? Ah well, I find it's best not to complain and feel sorry for myself (her) but to read, learn, try things (safely) and forge ahead by finding the best way to deal with it.  Not that we've found that best way yet, my daughter has gone from 75 lbs (last year), down to 54 (when sick), back up to 75 (on prednisone last spring), and now back down to 61 with continuing symptoms.  Her 2nd colonoscopy is scheduled for Jan. 27th. Wish us luck. Hoping it hasn't spread out of the terminal ileum.  Her current med regime of pentasa and entecort are not doing the trick. She also takes lots of probiotics, omegas, calcium, forvia (see forvia.com if you haven't heard of it), and vit D3.  Anytime you want to talk, I'm here often. Bless you and your son.

Posted 1/17/2010 3:58 AM (GMT 0)
Hi Trains03 and MoobyDoo, I'm so sorry to hear about your children being diagnosed at such a young age. I was diagnosed at age 9, was in remission for 30 years after surgery at age 13. As difficult as it was, there were many positive things that came out of the experience. I learned to eat right and take care of myself that has lasted all the years. As soon as I felt better after surgery, I began so involved with every activity in school I could, I was so grateful for the newfound energy and opportunity. Between 9 and 13, I was on prednisone a couple of times and hyperalimentation as well. There is no doubt it was a difficult time, but there is light at the end of the tunnel. The most important thing to do is to present an environment for your child that is as stress-free as possible. It was no coincidence that my final flare-up that led to my surgery peaked as my parent's divorce was at it's pinnacle.
Having had Crohn's as a child, I never took life or my health for granted, and I'm happy to say that I turned out just fine, with a wonderful family and successful career of my own. I'm sure your children amaze you every day, and if you are here on the forum, you must be doing everything right. Good luck.
Posted 1/17/2010 5:04 AM (GMT 0)
Wow. How do they even diagnose a 2 month old?

Also, that's a great story Gumart!
Posted 1/17/2010 8:47 AM (GMT 0)
There are definitely some major benefits of getting Crohns early. I know my friend in college has had it since he was 11 years old, and he is doing great right now. He has definitely learned how to live with the disease.

I just recently got diagnosed as a senior in college, and I am having all sorts of issues. My GI actually is in Connecticut and I live in Philly for one. Sure I tried to get one in Philly, but insurance is a problem.

I'm also pretty sure that after I graduate I am no longer on my dad's health insurance plan. This has led me to look for work in Canada after graduation.

Trust me, by the time your kid is my age Crohns Disease probably won't be on his mind..

In the end though I was given twenty years of good health, and I guess I should cherish that.

I hope I am making you feel better and not worse...
Posted 1/17/2010 3:15 PM (GMT 0)
Hi Train I have lived with this darn disease for almost 35 years, and I want you to know that their is life with Crohns.  I have been at the same job for 20 years, I am happily married to the most wonderful man out there, have 3 grown adult children, and 5 grandbabies.  Yes there have been some rough days in the 35 years, but also healthy days where I could enjoy life.  Hang in there when the right treatment is found you and your little guy will see better days.  I think with your little guy being diagnosed so young is going to make him a stronger and more compassionate man when he grows up.  Hugs to you both!
Posted 1/18/2010 3:59 AM (GMT 0)
Gunmart - Thanks so much for your inspiring story. 30 years of remission! Wow! Now that's something to aspire to for my daughter. Thanks for posting something positive. It's very hard for me to read all the frightening stories here on this board, yet somehow I keep coming back for the moral support.
Posted 1/18/2010 7:09 PM (GMT 0)
Hello,

I'm new on this forum, and am also looking for moral support. I'm 21 years old, and was just diagnosed on Dec 22, 2009 with crohns. On January 6th I went in for emergency surgery, and have been a little worried with the quality of life I will have. This is such a helpful forum, I love the inspiring stories. I know I can have a great and somewhat normal life, and still do all the things I've wanted to, and so can your little children! Medicines are amazing, and bring new hope. Im currently researching remicade, and will most likely start that this week. Life is such a rollercoaster! With school, and boys, and just life stresses, it's pretty crazy having health issues on top of that! But it's amazing the good things that have come from it: my family has come closer and I am so grateful for so many things. Crohns is just another bump in the road... Best of luck with your little ones, I'm sure they will amaze you-
Posted 1/19/2010 1:12 AM (GMT 0)
Jsevere - Sorry to hear about your recent diagnosis, but you sure do have a great attitude! Good for you! Hope you are well very soon.

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