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Humira - to use or not to use?

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Crohn's Disease
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Posted 2/14/2010 1:57 AM (GMT 0)
After my lower GI last week, my doc wants me to start Humira. My xray I think looked worse than my symptoms. I'm immune to Remicade (tried it twice before they knew you had to continual use) and am on 6mp for the past 10 years since dx. I have been trying to read the Humira website for the past 3 days, start crying and have to get off the computer. The side effects sound very real and very frightening. Have you tried Humira? What is your experience?
Posted 2/14/2010 2:05 AM (GMT 0)
I was on Humira for 2.5 years - the side effects are similiar to Remicade and rare. I didn't have ANY side effects the entire time I was on it.

It was a fabulous drug for me and I wish it had worked longer than it did. There are risks to all meds, even your basic OTC ones, but in the end you have to weigh your options and quality of life and go with what is the best option at the time.
Posted 2/14/2010 5:39 AM (GMT 0)
I too am a side effect freak, but after my last scope and being told that my disease was back after a short 10 month remission after having surgery. I was ready ready to kick this in the a** and fight fire with fire.
I did my 6 loading doses and I am now done with the first month regular dose and i have no side effects. I believe they have to list every side effect if it happend to one person.
Don't be afraid and give it a shot.
any other questions, ask away.
Posted 2/14/2010 8:20 AM (GMT 0)
Hi I also am on Humira. I don't worry about the side-effects. I am living a normal life because
of the Humira. I always try to look at the positive and not the negitive.
Posted 2/14/2010 1:11 PM (GMT 0)
Well if Remicade and Humira have the same bad side affects so if you have been on remi you could also try Humira.

I am on Humira now have been for 2 months I am not feeling much change but hopefully it will kick in.

No side affects at the moment. but I did get side affects from remicade.
Posted 2/14/2010 6:14 PM (GMT 0)
I have been on Humira for a year. I am in remission and I have no - repeat no day to day issues with Humira. I'm hoping I can stay on this for a while. I feel normal again. I'm even dating.

As for the side effects, I've come to accept them. Most of the drugs that treat Crohn's have significant warnings. They are a part of the package and that is chance I've decided to take. Non-Biologics are not an option for me - so I pretty much have accepted the side effects.

Good luck in your decision.
Posted 2/15/2010 11:53 PM (GMT 0)
I was on Humira for a little over a year and am considering going back on it.  I used to take Remicade and had to stop due to allergic reactions and loss of response.  The only side effects I had from Humira were injection site reactions (just a whelt) and frequent upper respiratory infections...much less side effects than what I had on Remicade.  The Humira kept my gut in remission but didn't help enough with the arthritis, so I switched to Cimzia.  Now that I am off the loading dose, I think it is helping much less with the arthritis, and I am out of other options, so considering going back on the Humira, even though it doesn't help as much as I'd like. 

The websites and doing research online can make it sound very scary, but all of these drugs have side effects.  I know of someone who was just diagnosed with lymphoma, which they believe was caused by Remicade.  But, you have to choose between the risks and the benefits, and sometimes you have to try it to decide if it works well enough to be worth the risk (and cost). 

Posted 2/16/2010 4:02 AM (GMT 0)

Hi all,

 

I have been on Humira for almost a year now on and off and its been the only medicine that has helped me keep my crohn's under control I have tried most of the tablets that most doctors would prescribe for crohn's patients and they may have worked for a bit but the humira is the one that has kept me going and not as sick as i use to be, i have had crohn's since 2005 and i am only 23, so it hasnt been that great. But since i have been on humira my life has been a little more simpler.

 

I say give it a chance and try it out if it doesnt help you at least you know you tried everything possible smilewinkgrin

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