New and really at my wits end

Hi.. I am new to this board and really need some support...

Short back story... I have a family history of all sorts of bowel problems..and I have had issues with everything.. this past April, I was feeling really sick with migraines,dizziness..and went to a nutritionist who said i should avoid gluten.. which I did and all of my symptoms disappeared. Even my stomach issues cleared up.

Forward to Christmas when all of a sudden I was having diarrhea...thought I had gluten.. shrugged it off.. on Jan 7 I started having 15 movements a day.. urgent.. alot of mucus and diarrhea..thought I had a bug... went to the drs the next week, she sent me to a gi dr...they did a xray for an obstruction - negative.. they scheduled a colonoscopy and found ulcers, erosion but couldn't pinpoint crohns. I had a barium test and was told it was normal. I had a ct scan... normal...I had a breakdown with the doctor because at this point I am out of work, still sick, have tried 6 different medications .. she said she thinks it crohns but needs to keep looking. I had a pill cam scheduled , did that on tuesday. Today the dr called and told me that the pill got stuck in my stomach, they have 8 hours of footage from my stomach. I have to go in for an xray and than they want to schedule an endoscopy.

All of this seems crazy.. if they think its crohns , why not just treat it? what else are they looking for? I truly don't understand what is going on. Does any of this sound like Crohn's? My cousin had it but I was young when he was diagnosed.. I know he was in the hospital for a long time.

I just don't know where else to go..what to do..

Thank you.

I hope that they find something soon, it sounds like you are really suffering. Good luck and try to keep your chin up!

Oh my gosh i can so relate, the not Knowing and seeing all the doctors and being so tired at the same time. I dont know much about the camera. I just remember the xray screen where my intestine looked like string compared to the healthy part. There are so many other diseases that can mimic crohns it just sucks. But hang in there. Make sure you get copies of all tests that are done. And if there is a doctor your not sure about get a second or third opionion. never give up you are in my prayers. :

Not knowing,out of work,the tests,the Dr.'s,the drugs,the pain,the D,the worrying...
We all know it will be o.k. for you soon,hang in there,I know they'll figure this out!

They have had me on flagyl, bentyl, lomdil, xifaxan, there were two others.. can't remember... I am still staying away from gluten, my whole family had gone gluten free last year. They could not test .. you are right. I have a strong family history of crohn's, colitis, and bowel cancer but when I think about how sick my family always was, especially my dad.. I wonder about gluten issues. I had an independent test done for gluten and it showed celiac...but don't know how reliable.. it was a nutritionist that saw the gluten, my reg dr at the time wouldn't listen.

getting sidetracked.. sorry... really feel awful today.
I will keep pushing...thank you.

Some people have celiac and crohn's so it could be a combo, or celiac and some other tummy thing, since you are still staying away from gluten, or gluten may just have been a coincidence. None of the meds you listed are strictly Crohn's so if it is CD and they can get you on the right medication maybe you can get feeling better. Then again, it they can just figure it out, maybe you can get feeling better. I know its hard to tough it out, but we will be here to listen and answer questions. (((hugs)))

June,
Alot of us struggled with getting a dx, so I hope you know that you are definately not alone.
Take Care,
Navy

Just wanted to let you all know that I had an appointment yesterday. She did an xray to make sure I passed the pill since I could not verify. I did. She then took an IBD panel and scheduled yet another test, a gi endoscopy with capsule, she is going to push the pill through my stomach. She was waffling all over the place and said she still thinks its crohns, but maybe its gastroperesis(?) because the pill didn't leave my stomach. Then she decided she wanted me to take a daily laxative which floored me since I am back to go to the bathroom about 10x a day..I am beyond frustrated. I really don't know what to do. I am scared to start over but this is not working.

thank you for all your support..