Humira anniversary tomorrow

Tomorrow it will be one year since I started Humira (well, 52 weeks anyway).  When I started it I was getting almost monthly blood transfusions from bleeding (my hemoglobin kept dropping to 8), lots of bloating and gas and I was about 129/130 lbs. 

Today my HGB is 14, I've felt great for the past 8 months and I've even gained 10 pounds (though I'd like to gain much more).  I'm working 40-50 hours a week as an accontant, caring for a wonderful 8 month old daughter and even getting some exercise in.  Last year I couldn't even curl I was so exhausted and this year I haven't missed a game.

This was my last option before surgery, so I'm glad it worked, although I know I could need surgery at any time - especially since these TNF's have the propensity to just quit working.

Thanks to everyone here who helped me with the decision; and for the support over the past 2 years or so.

Thought maybe this post would be helpful since people always seem to post with questions about outcomes with TNF's.

Mike

"First I was afraid of TNF drugs, now I'm afraid of not having them."

Me too!

It's so nice to hear good things on this board!! I'm so glad you're feeling better. That's awesome that people will have something positive come up when they're wondering about humira.
Congrats!

Wow Rider, your HGB is great now! Are you still taking Proferrin? I can't find it anywhere here anymore, they told me that it's backordered everywhere, lol. Glad to hear that you're doing well!

Glad you're still feeling better after one year on Humira.  I also feel better and have been on Humira for two years.  I'm 72 years old and previously had 3 surgeries for strictures and inflammation.  My doctor doesn't want me to have more surgery, so after my last flare he suggested taking Humira.  Since then, I've been able to eat more fruits and vegetables than I had in years and have more energy.  So knock on wood, I'll keep taking those twice a month injections.

 dx with Crohn's in 1990 - 3 surgeries.  Taking Omega 3, vit b-12 injections monthly, plus multivitamins.  Also on Pentasa (8 per day), and 50 mg of Imuran

 

Love a positive story! For now I'm doing well on my methotrexate and occasional infliximab but humira will be whats next if and when my current combination stops working so its comforting to hear good stories!

Congrats! Glad Humira is working for you. I have just completed month #2 and I'm doing okay!

Hi Rider Fan!

Geez, I can't believe it's been one year already!! Seems like just yesterday that you posted about starting up on Humira. I'm so glad to hear that you're doing so much better!! Like you, I was quite afraid of first going on Humira, and now afraid of NOT having it! I've been on Humira for 14 months now and doing well.

Take care---
Cheryl

Hi Rider Fan,

Post surgery healing is going well. I'm even able to eat things like popcorn now!! Things high in fat bother me, though. But can't complain! Will see my GI doc in mid-March. Am curious to know why I'm slightly anemic again.

Well, back to watching the Olympics.

Take care---
Cheryl

Congrats Rider Fan!!! My next infusion of remicade in 6 weeks will be 3 years, so I'm a fan of tnf's as well! Welcome Carol to healing well!