rv fistula

Hi, I'm new here, just found this site. I've done some research on the internet and I'm 99.9% sure that I have a rv fistula. I pass gas and stool through my vagina. And have leakage all the time. I've had it for several years. I've found it really comforting to know that I'm not alone with this. (For years I assumed I was, as I was too embarrassed to talk to anyone about it.)

What have others done for their rv fistula? What works, what doesn't? Can this be fixed w/o doing an ileostomy? I've learned how to live w/it and probably could go on just dealing w/it, but if someone has found a better solution, I would love one.

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Crohn's disease since 1992
I've tried asacol, immuran: (caused pancreatitis), humira, remicade: (difficulty breathing), predinsone: (caused osteoporosis, fractured back), pentasa, methotrexate, several studies.

Never had any surgeries to remove my bowel, and wants to avoid it while I can still live a relatively normal life.

Welcome!

Fistulas can be very distressing, can't they? I agree with medchrt that this is probably something you should be discussing with your doctor as soon as possible.

As far as treatments go, you might like to click on the "abscesses and fistulae" link in my signature (below). When you do that, you'll find some of our very best threads on living with and treating fistulas and I hope they'll be able to give you some reassurance and helpful information.

All the best to you; looking forward to getting to know you better,

Ivy.

Thanks for the suggestions. I have a doctors appt in a couple of days and just wanted to know some options to discuss with him. And thanks Ivy, I'll check out that link. This is a great site!