Has anyone been on any food diets that work?

G-Free? No Carbs, etc?

I'm at my wits ends, I don't know if anything works better than others.

I'm going to my new Doc on the 15th, the last GI was a jerk and wanted to overmedicate me even though I could barely function.

 

Post Edited By Moderator (Nanners) : 4/7/2010 7:56:44 AM (GMT-6)

I personally follow a low residue diet all the time. I am currently in remission and find that this agrees with me the best. Diet is very individual for most of us, so we have to find what works best for us. Whatever you do you should consider diet and medications for Crohns as complimentary of eachother and use both at the same time. Good luck!

hi KristiniaLeAnna

my 13 yr old son has been on the SCD for almost two months. he has gained 5 pounds and feels generally good. going through a bump right now. he has been off all meds since 2008 and has done better than he ever did on immuran. the quickest results came from a soup, - carrots, celery, turkey breast, zuchinni, salt, ginger, garlic, coconut oil. cook all day, then puree.

Yeah, I'm going to ask my new Doc on the 15th to test me for Celiac Disease.. because I guess I'm starting to hear more and more about patients having Celiac and Crohn's...

Lately I've been having it rough.. the past month or so I've had visible blood in my stool. My last Doc had me on 6mp and after 3 days of re-taking this (hadn't taken it since I was 16) I started feeling like death.. so I basically stopped taking it... I was on Humira last year but I came in contact with a bug/spider and was bit, my whole hand swelled up so I went to my Primary about it, it took 6 antibiotics to fix this! Then came the respiratory infection, joint pain, and high fevers all at once while on Humira.. so I stopped taking it.. I told my Doc my symptoms and he had wanted me to continue on the Humira (when it advises against taking if you have any sort of respiratory infection, high fevers, etc..)...

I switched Docs just recently because my Doctor was always trying to medicate.. not solve anything.. He did a colonoscopy and CAT scan last year and refused to show me my results.. he said I had a narrowing in two different parts of my small intestine.. I requested Remicade.. he was against it.. something about he didn't like infusing anyone with mice genes.. Remicade had worked before I accidentally found out I Needed surgery back when I was first diagnosed.. another Doc didn't think to put me back on Remicade (while on Remicade I had "NO" symptoms at all) it was like a miracle..

Anyone else feel like a lab rat at times? Do your Docs listen to you? I'm in RI, the specialist I'm going to next week is in Mass... I'm hoping he can hear me out and listen.. I've had Crohns since I was 16, I'll be 27 this year.. I had surgery in 2000 to remove 16 inches of small intestine due to a blockage.. Lord it was hard getting my Pediatric GI to realize I was really sick.. I demanded a CAT scan after all the barium xrays and colonoscopies that didn't show him I had a blockage.. I just always knew something was wrong.. if I didn't push for a CAT scan I'd have been dead back then.

I can't tell lately if diet is affecting me.. I don't remember having such an issue going to the bathroom before.. I'm going after everything I drink or eat and I'm seeing bouts of blood, then floaties, then just horrible crap.. No vomiting tho.. I'm on a prebiotic (that one by Phillips) and that's it.. I'm afraid to take the drugs anymore...I also have a hard time absorbing any pills hence the reason I'd like to try Remicade again...

Note I've been on Pred, Sulfasalazine, 6 mp, Pentasa, Asacol, Humira, Flagyl, and Cipro... didn't ever seem to fix anything..

Smiles,

K

makers diet and scd totally work for me. i stay just outside of the ketogenic range (130 g carbs/day) and i dont have to exercise to maintain my body weight. it is great. been off meds for like 2.5 years now because of it. no symptoms. best i felt ever. but i think my experience is not a-typical nor is it typical. every one is so different, which is why there is not one med that works for everyone. i think i am a case that shows the possibility of diet if you are disciplined enough.

Dairy free diet. Like complete dairy free diet (checked labels for whey, lactose etc). Symtpoms soon disappeared and only reappear if I have anything with dairy in it.

Give it a go i'd say. Yes it is hard to do but, apart from the ibd symptoms, i feel so much healthier. & we do NOT need dairy in our diet at all...just a marketing ploy saying it is good for us.

I don't see rhino's drinking milk. we are the only species to drink milk. calcium is prevelant even in water!!!

i dont know about a lot of people having crohns and celiac - i dont think they go hand in hand. but i havent looked at the numbers either. however, most people are sensitive to varying degrees to gluten. this goes for crohns or not. my sister does not have crohns but her blood work showed gluten sensitivity. she stopped eating gluten and felt tons better, not knowing she even had a problem. same with dairy. they are the two most common food problems (not necessarily allergies). soy and peanuts and shellfish are next. i feel better by not eating a lot of grain based foods, which means i also eat low glycemic and do not eat refined/processed foods. this has me feeling better. granted by eating this way i have removed a ton of gluten from my diet, but before i did it, i always felt fine with bread and grain based foods were my comfort foods. so food for thought...

I agree with CrazyHarry about makers diet or scd. My experience has been beneficial with the maker's diet.

In general, I think every crohnie could benefit from staying away from sugar and processed foods and eating more natural foods.

NiceCupOfTea, some of my symptoms pre-SCD were fistulas, fissures, constipation, cramping, bleeding, and acid reflux. All are now gone (took about 6 months for all those things to happen). My fatigue, unfortunately, is not better. My last TSH was way too high though, which indicates I'm hypothyroid, so that could be the problem. I've also had some improvements in non-crohn's issues. My seasonal allergies are almost non-existent now (and I no longer get a fluid backup in my ears), my eczema is almost gone (one little patch on my pinky finger), and I no longer get weird fluid filled bumps in my mouth after eating

I'm currently having a minor setback (more bloating and gas), but my liver enzymes are sky high right now (thanks Humira, Remicade, Imuran, and 6MP), and I'm thinking that there is a connection there. Also, I'm a little suspect that Welch's grape juice may no longer be SCD legal. I drank it every day for a year and was fine. Then the label and cap color changed, and the taste is a little different. Last week I finally connected that I was getting the bloated feeling AFTER I drank some Welch's. Some other people have reported the same thing. Makes me sad, because I really liked Welch's.

If you give SCD a try, lots of luck! It took 2 or 3 months of major research before I felt ready to take the plunge. I'm very glad I did it though .