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mild heat stroke, severe heat exhaustion

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Crohn's Disease
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Posted 5/4/2010 5:53 PM (GMT 0)
i had mild heat stroke or severe heat exhaustion this past summer on a mountain biking trip, had to have medivac, I'll cut the story short. now that that has happened, my cd has gotten really bad, I dehydrate relly easy and i get chills that are violent, so bad I have to get in bed. has that happened to anybody that has multiple surgeries, I have what they call dumping syndrome. 9 ft of small bowel removed. I'm on pred and imuran.
Posted 5/4/2010 6:03 PM (GMT 0)
hey artist....I have never had dehydration that severe, but always get heat exhaustion easily. I also was never given the words dumping syndrome, but could not form a BM and sprinted within 15 minutes of any edibles. I only had 18" removed.
I am trying out being back on cholestyramine to bind the bile and other fluids that just drop through my system (missing the valve that helps maintain and form BM as they removed my terminal ileum---is this where you had surgery). I have found that I already am enjoying less BMs and more solid. Becuase of what you wrote, I am now wondering if my summer heat exhaustion bouts will be better too. I will let you know on that.
I also know I get heat exhaustion easier when my iron levels are low so ponder that.
Hope you have a better summer this year!
Posted 5/4/2010 7:30 PM (GMT 0)
I get heat exhaustion easily. Ever since I was dx with Crohn's, I've had to be very mindful of my fluid intake or else I get incredibly weak and I get tremors. Drinking electrolyte fortified drinks seems to help. Plus, prednisone can cause muscle atrophy, which it did for me when I was on it. I would get so weak on prednisone that I could hardly stand up. My doctor put me in physical therapy. I haven't had any surgeries, but I imagine some of the same things apply to both of us.
Posted 5/4/2010 10:56 PM (GMT 0)
I always thought you had to have gut removed to get dehydration issues, yes I had that valve removed as well. everything was under control until the heat thing happened. someone on this forum told me about electrolyte strips that you put in your mouth and they disolve into your blood stream, pro runners use them. I think i need to look into them, I think her handle is dinkydee, her husband wholesales them to places like REI or any running store. I think I'm going to check them out, i see my gi on thur. so on my way home I'll go to REI, theirs a big one in San Diego

Posted 5/5/2010 6:14 PM (GMT 0)
Might I suggest Gator Aide? 64 oz/day minimum if you've lost a lot of gut or have an ostomy. If you get a cold you need to double that intake. It's a pain in the rear but if you've never been actually clinically dehydrated you don't know what your missing :) Addled brain function, fluctuating heart rate and BP, blood work that makes the doctor pretty nervous.... I've had it happen a few times w/o strenuous exercise just bad colds and let me tell you it scared the heck out of me!
Posted 5/5/2010 6:37 PM (GMT 0)
I have a chronic dehydration problem. My electrolytes are always within normal limits, but my body can't seem to get enough fluids. I've been hospitalized 6 times this year for severe dehydration (I've passed out 3 times because of it). I haven't had any of my bowels removed.
My doctor and I have it set up that I get saline infusions every couple of weeks. They think I might have Addison's disease as well, though...it might be something that you should look into. It's not uncommon in patients that have to use high-dose steroids for long periods of time.
Posted 5/5/2010 7:05 PM (GMT 0)
Hope your not like me. I had heat exhaustion many years ago and I have had trouble with heat ever sense.
Posted 5/6/2010 3:55 PM (GMT 0)
yes that is exactly how Iam as well, but it also made my crohns erupt in other areas other than my small bowel. I see my gi today, so I need to address with him dehydration problem, I can't believe that my cd was under control until that heat thing, now I'm on disability, this was aug of 09. the thought of riding my bike on a ride scares me

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