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Crohn's Disease
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Posted 5/9/2010 3:10 PM (GMT 0)
I am having trouble sleeping since I am in flare, I Have taking hot baths, tried busppirone, and
HYLANDS insomnia, nothing seems to be helping, I AM in high anxiety mode,
any suggestions, cant seem to get my mind clear, I AM TAKING ASACOL AND PRED 30MG
A DAY, will start weening in 7 days to 20
thanx TIGERPAWN
ps lack of sleep and taking pred, making me real jittery
Posted 5/9/2010 3:14 PM (GMT 0)
You should be taking all your Pred as early in the morning as you can. When you take split doses like you are, it really cause alot of insomnia. Or you can ask your doc for something to help you sleep. Hugs!
Posted 5/9/2010 3:22 PM (GMT 0)
when i went to 30 mg I started taking it all in the morning, any other suggestions,
thanx for quick response
tiger
Posted 5/9/2010 3:26 PM (GMT 0)
Then ask your doc for something to help you sleep.
Posted 5/9/2010 3:37 PM (GMT 0)
I did and he prescribed BUSPIRONE OVER XANEX, and it hadnt helped, tried it 2 different nights,
he prscribed 10mg dose.
thanx again for quick reply
as alawys I remain tigerpawn
Posted 5/9/2010 3:48 PM (GMT 0)
Its worth exploring the idea of exercise - tension gets stored in muscles. If you can find the right teacher, yoga does a wonderful job of helping calm the body. Also, breathing exercises are an easy, but very powerful way to help a body rediscover its balance.
Posted 5/9/2010 5:27 PM (GMT 0)
I didn't sleep more than 3 hours a day for months when I was on pred, it made me very jittery. I'm normally a good sleeper, so the insomnia was a new experience (joy) for me.

I did use Imovane (don't know if it's the same class of drugs your doc Rx'd), but this one allows you to dream. I found it did nothing for me when I was on the higher dose, but helped as I got below 20,mg...Still I went through another night of insomnia when I came off it which was a few days after coming off the pred.

Seems you might have to wait it out, but this doesn't mean you don't need to rest as best you can.

I found 2 things that kept my mind busy while my body rested,

1) Meditation, I did some of my best meditating on pred, go figga. If you can find a Mindfullness program in your area, I cannot recommend it highly enough. Whether you can get into one now or not, it helps you deal with the anxiety a life of CD can bring. It will give you tools to help you cope in so many positive ways.

2) Quiet music. I went to single instrument recordings, guitar, cello, etc. I let my mind wander with the music and in the mean time my body got rest.

This is my two points worth, hang in there, and reign that mind in when it wanders into worrisome territory, that will only make your anxiety worse...

Hang in there Tiger
Posted 5/9/2010 5:50 PM (GMT 0)
thanx, mtoronto2, will try some of the things u suggested, but being on this pred, my attention span
is about 5 seconds before it wanders back into worrisome terrotory,
I guess I MIGHT have to wait it out, I HAVE ANOTHER 3 WEEKS OF TAPERING.
THANX AGAIN
tigerpawn
Posted 5/9/2010 5:55 PM (GMT 0)
Best I can suggest with the worries, is to let them go, think other thoughts, it do take some practice, but it can be done. Honest!
Posted 5/9/2010 9:32 PM (GMT 0)
I like most on here can almost guarentee that your insomnia is due to your pred. It is one of the worst side effects of the medication and it is not odd for me to go 2-3 days without sleep when I am on it. The best thing you can do is eliminate any caffiene while you are on it such as coffee, tea, cola, or anything that will stimulate you. If it is really bad call your primary care and let them know what is going on and have them prescribe you a sleeper medication like ambien or lunesta. Be advised that these medication are really strong and can make you do some odd things if you are a sleep walker.(I still have a day that I do not remember when I accidentally mixed ambien with nyquil but don't worry my family remembers is for me lol) If you don't want to go prescription medication you can also try Tylenol PM or Excedrin P.M. which I promise will put you out like a baby.
Posted 5/9/2010 9:33 PM (GMT 0)
Not all sleeping medications work the same way. If the one your doctor gave you is not working, tell him. You need to speak up for yourself and ask for something that works. This is one of my pet peeves about our doctors. They give us these drugs that work wonders for our DD but forget that they can wreak havoc on the rest of our lives. If you are not sleeping your body is not healing. You need to be sleeping and your doctor has the power to help you, all you have to do is ask/demand it.
Posted 5/10/2010 8:11 AM (GMT 0)
A simple over the counter remidy is benydryl take 2, should help you sleep.
Posted 5/10/2010 11:14 AM (GMT 0)
wiull benadryl mix okay with pred and asacol
thanx
Posted 5/10/2010 12:31 PM (GMT 0)
Best to get something from your doc, or at least check with pharmacist re: benedryl mixing with your meds, and how it may effect CD.
Posted 5/10/2010 1:04 PM (GMT 0)
I have taken Benedryl many times while on both those meds. Just helped me to sleep. Good luck!
Posted 5/11/2010 4:27 AM (GMT 0)
Prednisone has also kept me awake too. The GP gave me a script for a night sedation which gave me about 4 - 5hrs of sleep. Not alot I know, but it was a relief to have some sleep on board. The name of the drug is temazepam. He assurred me there was no interaction with the prednisone.. as suggested above, taking the pred as early in the am is best - 6 or 7am. I am currently on 25mg and on the weaning process each week too. The temazepam is what is called a "short acting drug" and has a half-life of about 4 hrs. Meaning that you are very unlikely to wake feeling groggy or "out of it". Designed to get you to sleep and keep you asleep for a few hours. When I take it, I do notice it also relaxes you abit and takes the edge of the anxiety. Anyway, ask your doctor if you can have a script for something like this whilst on the pred. Its not something he will script you for time after time because it is a benzo drug which can become addictive, but used in the short term, should help. Good luck.

Charlee
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