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Crohn's Disease
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Posted 5/12/2010 6:27 PM (GMT 0)
I can't stop being so tired . All day want sleep all day just so hard just even get up do laudry. Been taking vitamins. Trying see help me and give me energy but its not working... My doctor just say fatigue part of crohn's disease.. So does that mean just have live with this?? Cuz seem like I can't ever do anything or go outside and play sports or anything really enjoy stuff . Cuz so tired and weak and sore and in pain all over my body and joints....
Posted 5/12/2010 6:41 PM (GMT 0)
Miranda, I feel your pain. I never have energy. I manage to work 40 hours a week, but aside from that I do nothing! After work I go home with intentions of doing stuff but it rarely happens. I just had my 4th injection of B12 today, and honestly I can't tell much of a difference. My friends have stopped calling me and asking me to do anything bc I always end up cancelling. Between being so tired and fear of getting to far from the bathroom, aside from work I feel like a prisinor at home! I know this was not much help- but just know you are not alone.
Posted 5/12/2010 6:49 PM (GMT 0)
Have you had your iron levels checked? What about vitamin D?

These both can make you very tired if you are deficient. Even if you're taking vitamins, check to see how much iron and D are in your pills, and ask your DR to test your levels.

I take 1000 iu D daily and ferrous sulfate during my menstrual cycle. Last year I was so anemic that it took 3 months of ferrous sulfate pills daily to get my stores up and my hemoglobin normalized.
Posted 5/12/2010 6:57 PM (GMT 0)
I'm tired way too much as well.  Sometimes it feels like it takes too much energy just to breathe.  I think mine is partly the Crohn's, but also tied to my low thyroid.  I'm on meds for the thyroid, and I hope that will end up helping!
Posted 5/12/2010 7:38 PM (GMT 0)
Yeah alway been anemia. But the doctor check that and said its finally normal. cuz alway been anemia sense been 13... I had them check my thyroid said it was normal cuz I have hypothyroidism, endometrosis, elipsey, mitral value prolapse, crohn's disease and acid relux disease, mood disorder, ulcers. They can't even ever seem know how treat the ulcers in my mouth there like 24-7. I take prenatal and calcium and vitamin d and b 12 the pill and omega 3 and stuff. But half time take calcium half of it just ends up in the toilet. Just started trying juice see help with energy. I don't know cuz so much I can't eat or drink. no juice or acid stuff or spice or greasy or fatten stuff. cuz whenever have ulcers in your mouth anything eat or drink comes in contact with them and makes them even worse and huge and extremly painful . i use this one stuff just so I don't feel the worse pain whenever brush my teeth
Posted 5/13/2010 3:49 AM (GMT 0)
I don't want to hijack your post, so please see my new one under "Causes of Fatigue"
Posted 5/13/2010 3:53 AM (GMT 0)
i'm always anemic which makes me always tired, but when i forget to take my iron pills and it gets to the point of being severly anemic i suffer from the things that you stated. maybe your iron level just dropped more then normal? I also suffer from adrenal exhaustion and that also causes someone tom be very tired all the time.
Posted 5/13/2010 5:17 AM (GMT 0)
Fatigue is very much a symptom of CD. Maybe that's why steriods are Rx'd in part. Checking your blood work good idea. B12 may or may not help. I know there are different types of shots, and that this can make a difference for efficacy. I'll try to get more info.

Of course talk to your doc about this, but I find this is one symptom I get little MD response with, why is that? It's one of the most debilitating.

I have found ways out of it, a tea called Flor Essence (or Native Legend Tea or Essiac), this had helped me over the years. The best is to brew and can it yourself. I found it helped my appetite too and it's tasty. I've taking it with meds, no problem, Keep in mind this is my solution, and I am not a doctor, though it was suggested to me by an ND.

I would also suggest getting your adrenal function test, it's a 2 par test. apparently.

(Suggestion for mouth ulcers, a multi spectrum, mid price range, vite E) chew a cap 2 'x day, one right before bed -- test to make sure it doesn't make worse, but it helps me immensely. Oh I spit the cap).

In the mean time, if you have to sleep you have to sleep. I feel less guilty about that if I at least get out for even a short walk...
Posted 5/13/2010 6:55 PM (GMT 0)
They said my b12 at 250. I don't know thats normal or whatever. Cuz they said b12 go up to like 1,500
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