I really enjoyed ignoring you guys...

Nothing personal to any of you, but I really enjoy not being on this board and reading posts. That usually means my CD is not bothering me and life is good as I casually ignore it and go on with life as if I don't have CD and I'm just a normal person. Ignorance truly is bliss. Well, that level of denial has been smacked upside the head with a series of flares over the last 6-7 months or so and it looks like I'm forced to deal with my CD again. I ended up in the ER again Mon-Weds with another small bowel obstruction and I'm back on the meds for the first time since my last resection surgery almost 6 yrs ago. NO FUN, as you all know.

Anyway, I tell you all this to say hello and to thank you all for showing me once again that I'm not alone with this junk. It's both encouraging and saddening to read what some of you have to deal with in your battles. New meds/treatments make me hopeful; hearing of young children being dx'd brings tears to my eyes as I remember those days too well and don't wish that on anyone, especially young children. Sometimes it makes me feel petty and that I have it pretty good as it is, but there are days I still wallow in the frustration of Crohn's.

So there you have it - I'm back on HW and hope to add a laugh or some input if and when I can. Press on, Crohnies!

Thanks, Gail.

Hang in there, Joie - things will get better!

On a lighter note, while I'm on prednisone I basically turn into Superman: need little to no sleep, have tons of energy, and get lots of stuff done. By noon today I ran 6 miles, trimmed our bushes, sprayed weeds, and started cleaning the garage. I'm trying to focus on the positives of being on meds right now, so making the most of it.

I'm the same way Joie. Sat away, pretend it isnt there. Then it hits me like a freight train, coming at me like the guy in the shining saying "Heeeeere's Crohn's-sey!". A little hard to ignore then. Called in to work 1-3 days for the passed four weeks (I work three twelves every weekend). So not only does it hurt physically, it hurts financially.. Its hard enough being a single 20 year old working full time and going to school full time.. four eight hour shifts for clinical rotations for school a week followed by classes at night and work every weekend it difficult enough without trying to drag crohn's around with me like a gorilla on my back. I have just reached the point now where I just want to quit. Put everything on pause and breathe for a few days. Then I go to the doctor, and he makes me feel like I am crazy, that I am not having a flare up after a scope (HELLO!!! Its crohn's! maybe you should look at the stomach and small intestines too! Not just the colon!) Then again, they are the ones who have the education and are supposed to know about all this stuff. Maybe I am crazy.

I also tend to think about the past and feel guilty about those days I felt great and took it for granted. Then my mind shoots back to the present as I dart for the toilet to either sit or worship. Then there is the future, which is the scary part to me. Whats going to happen to me? How long will it be until we get this under control? I want a husband, and beautiful children one day? Will that ever be possible? Will I even be able to produce a healthy child? What meds could I take while pregnant if any? What if I am having a flare during pregnancy? Then I read about all the women on here who do have children. That raises my spirits and I try to move on to other things. But it is always there lurking....

Dooger73 said...
On a lighter note, while I'm on prednisone I basically turn into Superman: need little to no sleep, have tons of energy, and get lots of stuff done. By noon today I ran 6 miles, trimmed our bushes, sprayed weeds, and started cleaning the garage. I'm trying to focus on the positives of being on meds right now, so making the most of it. wink

Wow. Even pre-Crohn's I never had that much energy. While I do feel (quite a bit) better on Entocort, my feeble energy boost from it is but as a flickering candle flame to a roaring inferno by comparison. >_>

On a serious note, it does make me wonder if there's more than physical illness and general debility which affects energy levels. I get shattered if I try to do anything too physical (such as gardening) for too long, but to some extent I've always been that way. Obviously made worse by Crohn's and anaemia, though.

staroflife911 said...
Its hard enough being a single 20 year old working full time and going to school full time.. four eight hour shifts for clinical rotations for school a week followed by classes at night and work every weekend it difficult enough without trying to drag crohn's around with me like a gorilla on my back. I have just reached the point now where I just want to quit. Put everything on pause and breathe for a few days.

Careful you don't burn yourself out: that sounds like a gruelling schedule for even the totally healthy.

On another note, there's no reason why you can't have kids in the future. There's few meds which can't be taken during pregnancy, nor is it any more likely you will produce sickly babies than the general population. It's easier said than done - I know - but you'll do yourself no favours by worrying about a future years away, particularly when it sounds like you've got an extremely hectic now to deal with.

Dooger - I get the same rush from pred and sometimes feel like a drug seeker when I complain of my various inflammatory aches and issues. Glad you're feeling so good!

It's a good reminder to keep up with maintenance meds. I think it's human nature to be noncompliant when you're feeling good. I have an awful habit of forgetting a midday dose of my meds - still haven't worked that one out. Grr.