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Crohn's Disease
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Posted 6/7/2010 5:09 AM (GMT 0)
I was wondering if any of you have try any vitamins try to help for your immune system or just see if help with your ulcers... Been trying everything because I can't seem ever get my ulcers in my mouth ever want go away. When get them get fever and nymlol notes get kind of enlarge to. I heard taking b complex and Vitamin C and Lysine can help and also help immune system fright them off. Cuz had me everything from paste to mouth wash stuff. On mouth wash steriod now. Just so extremly pain that when have them barely eat mac cheese and mash potatoes and I can't have anything spice or acid or fruits and stuff. Also been taking vitamins I still don't have any energy I feel like something suck life right out of me all I want to do is sleep until 2 pm and I feel like someone ran me over cuz my body so sore and achee and joints....
Posted 6/7/2010 11:30 PM (GMT 0)
Personally, I have been more faithful in Vitamins and Fish oil to improve a marginlized nutritional status. If your gut isn't absorbing correctly you are not going to heal as well. If you can tolerate fresh fruits -one Kiwi has 100% of Vit C. Nutritionally dense foods are better than vitamins but essential nutrients via vitamins better than none. Others have discussed the use of baby food-not too acidic, easy to swallow quickly and avoids the pain. Could also take pain pills (narcotic or over the counter) and then try to eat. Drinking something cold or holding ice in your mouth might numb the sores for a minute while you eat a few bits of something. Some people use Popsicle’s, I tried this recently . . .ok so a fudgecicle . . .but the cold from the inside out sure makes tummie things feel better.

Some people on this site discuss drinking liquid nutrition while sores are so prevalent-that might help. It seems that as I have trended this web site for the last several weeks the extreme fatigue is also associated with B12 deficiencies and anemia. Seems that your GI might be able to help you with this.

My comfort food in the past has been peanut M&M's and know that I am giving this up, if there is something you can tell yourself you are going to enjoy and do it consistently then it will become a habit (kinda like I brush my teeth to keep the evil dentist away). I am a novice in all of this but an avid reader-this is a synopsis of many postings. Part of healing is mental also. Healing is speaking and believing -finding an eternal way when much is dim-ask for help from loved ones, your church or people you trust. Be well!
Posted 6/7/2010 11:54 PM (GMT 0)
Maybe famvir would help you. I take them when I get shingles or mouth sores helps alot.

Julia
Posted 6/8/2010 5:33 PM (GMT 0)
what is famvir????
Posted 6/8/2010 7:33 PM (GMT 0)
Beats me.
I had alot of mouth sores when I was a kid, but once the asacol kicked in and the effects of the disease were drastically reduced, they all went away. I never once took a vitamin supplement.
I don't know how well you're feeling overall, but I encourage you to see these mouth sores as an annoying problem stemming from your poor health. If you receive a stronger treatment for your Crohn's, I believe the mouth sores will go away.
Until then, I recommend eating alot of ice, arroz caldo (chicken & rice soup), and fruits found in baby food jars.
Posted 6/8/2010 8:01 PM (GMT 0)

Your doctor can do bloodwork that will show if you are low on certain key vitamins.

Iron is one of the big ones to stay on top of, at least for me it is.

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