newbie post

Hi
I was searching on the net for information about Crohn's disease and any reported hair loss when taking mesalazine/ mesalamine. I was diagnosed with Crohn's a year ago, but probably had it for the last 20 years!
I have proved to be a problematic patient: I reacted to sulphasalazine, so was on mesalazine and prednisolone. The plan was to wean me off prednisolone and onto Azathioprine. I reacted badly to Azathioprine as well.
The next plan was to wean me off prednisolone. Once I stopped taking the prednisolone (still on mesalazine) my hair started to really fall out.
While I am sorry to hear other people have had this side effect, I am at least grateful to know I am not alone.
I am not really sure what other options will be, but I will return to my GI now feeling more confident that I know what is causing the hair loss.
look forward to chatting with you all
auslady

Hey auslady and welcome to Healingwell. I too am maintained solely on Asacol and do have some hair shedding myself. From my understanding taking some additional Folic Acid and if you can tolerate it some Biotin will help to stop the hair shedding. Hugs!

I would not stop the med you are on if it is working. Why fix something if it ain't broke. Many of our meds cause hair shedding. I know it seems like its alot, but I don't really think its that much.

Not at all, joint issues are a big problem for most of us. I am in remission and still suffer alot of joint pain.

No remicade is widely used for crohns as well auslady, it is quite successful in a lot of cases. Joint pain sure is another problem most of us endure along with this dreaded disease, mine was diagnosed as Rheumatoid Arthritis , there are a few of us that have this along with our crohns. I have never been confident to try just natural therapies as I was afraid of doing myself more harm than good, although things like probiotics, and general vitamins I have been on and they certainly shouldn't be a problem, but I never took anything without checking with my doc first. Good luck
Doreen

hi all
I am sorry I have not been on line to respond for a while. Thank you all for getting back to me. I am sorry to hear others have to deal with these joint pains as well. I have suffered sacro-iliac pain for years but had thought it was due to a work injury. It was very frustrating as I would get quite debilitating pain but could not explain what I had done to cause it (now I know -probably nothing)
My family and I went on a short break to Victoria this last weekend, we made it a long weekend by leaving Adelaide Thursday night after work. I have noticed that is my joints are going to play up these days it often starts with my shoulders aching and being a little 'crunchy'. I had not had an attack for about a month so was just looking forward to the holiday, but sure enough, Thursday night in the care I noticed that feeling, and by Saturday morning the joint and sacro iliac pains were full blown
So not happy!!
I am off to my gastro guy in early August, so will discuss what to do. I did see a rheumatologist, but it seemed he was going to be directed by the by the gastroenterologist so there did not seem much point to keep seeing both. Now I am wondering if I should go back and discuss this with him. Will work it out.

Claudine it must be hard looking after 3 children on your own, I hope you have supports.
I have one child and was a single mum and I know how tired I felt and the joint pains were so hard to work through, not to mention the tiredness and all the other weird things that go on with this disease.
My apologies again for not getting back sooner. has anyone heard from Nanna?

What, hair loss as well............I guess that explains the dramatic thinning I have noticed lately.  GREEEEEAAAAAAAT!