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Inflammatory Bowel Disease Questionnaire: anybody have a copy?

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Posted 7/13/2010 2:33 AM (GMT 0)
I've been doing some reading and this has been mentioned as a measure that is fairly well correlated with disease activity, and I was thinking it would be useful (fun, to a nerdy person like me) to track my scores on something like this so I can see more gradual changes I might otherwise miss.

However, I can't seem to find a copy of the actual questionnaire and scoring ranges. I've got some articles on its development and questions but not how to score it, or an alternative form that has how to score it but not what ranges are considered "remission" or "active flare" etc.

Does anybody know of a measure similar to this, or a way I can get a copy of the measure without paying 150 dollars for a pack of 75? I'd like to use it to make a spreadsheet I can track my symptoms on. I can make my own but I figured one with norms and research behind it would be better than anything I can make up.

Post Edited (crohnskitten) : 7/12/2010 8:50:15 PM (GMT-6)

Posted 7/13/2010 2:47 AM (GMT 0)
There is no such thing as Irritable Bowel Disease. There is Irritable Bowel SYNDROME and there is INFLAMMATORY Bowel Disease.

There is the Crohn's Disease Activity Index - which is a useless measure used in research. CDAI.
Posted 7/13/2010 2:49 AM (GMT 0)
Thanks for correcting my typo, I guess I was trying too hard to multitask. The measure I'm referring to is the IBDQ http://www.flintbox.com/public/project/641/
Posted 7/13/2010 3:33 AM (GMT 0)
Short Quality of Life in Inflammatory Bowel Disease Questionnaire (SIBDQ)

This questionnaire is designed to find out how you have been feeling during the last 2 weeks. You will be asked about symptoms you have been having as a result of your inflammatory bowel disease, the way you have been feeling in general, and how your mood has been.

How often has the feeling of fatigue or of being tired and worn out been a problem for you during the last 2 weeks? Please indicate how often the feeling of fatigue or tiredness has been a problem for you during the last 2 weeks by picking one option from below
____ All of the time
____ Most of the time
____ A good bit of the time
____ Some of the time
____ A little of the time
____ Hardly any of the time
____ None of the time

How often during the last 2 weeks have you had to delay or cancel a social engagement because of your bowel problem? Please choose an option from below.
____ All of the time
____ Most of the time
____ A good bit of the time
____ Some of the time
____ A little of the time
____ Hardly any of the time
____ None of the time

How much difficulty have you had, as a result of your bowel problems, doing leisure or sports activities you would have liked to have done during the last 2 weeks? Please choose an option from below.
____ A great deal of difficulty, activities made impossible
____ A lot of difficulty
____ A fair bit of difficulty
____ Some difficulty
____ A little difficulty
____ Hardly any difficulty
____ No difficulty; the bowel problems did not limit sports or leisure activities







How often during the last 2 weeks have you been troubled by pain in the abdomen? Please choose an option from below.
____ All of the time
____ Most of the time
____ A good bit of the time
____ Some of the time
____ A little of the time
____ Hardly any of the time
____ None of the time

How often during the last 2 weeks have you felt depressed or discouraged? Please choose an option from below.
____ All of the time
____ Most of the time
____ A good bit of the time
____ Some of the time
____ A little of the time
____ Hardly any of the time
____ None of the time

Overall, in the last 2 weeks, how much of a problem have you had with passing large amounts of gas? Please choose an option from below.
____ A major problem
____ A big problem
____ A significant problem
____ Some trouble
____ A little trouble
____ Hardly any trouble
____ No trouble

Overall, in the last 2 weeks, how much of a problem have you had maintaining or getting to the weight you would like to be? Please choose an option from below.
____ A major problem
____ A big problem
____ A significant problem
____ Some trouble
____ A little trouble
____ Hardly any trouble
____ No trouble

How often during the last 2 weeks have you felt relaxed and free of tension? Please choose an option from below.
____ None of the time
____ A little of the time
____ Some of the time
____ A good bit of the time
____ Most of the time
____ Almost all of the time
____ All of the time

How much of the time during the last 2 weeks have you been troubled by a feeling of having to go to the bathroom even though your bowels were empty? Please choose an option from below.
____ All of the time
____ Most of the time
____ A good bit of the time
____ Some of the time
____ A little of the time
____ Hardly any of the time
____ None of the time

How much of the time during the last 2 weeks have you felt angry as a result of your bowel problem? Please choose an option from below.
____ All of the time
____ Most of the time
____ A good bit of the time
____ Some of the time
____ A little of the time
____ Hardly any of the time
____ None of the time
Posted 7/13/2010 7:15 AM (GMT 0)
wow, thanks!
Posted 7/13/2010 10:40 AM (GMT 0)
I have to fill this out every time I go to the GI's office. Frankly, it doesn't ususally apply to my symptoms seeing as it only covers 2 weeks and it's months in between office visits.

JMHO
Posted 7/13/2010 11:23 AM (GMT 0)
It's interesting how patients are managed so very differently by physicians.  Hmmm, my GI is hard to get a hold of and I've never seen that questionaire before.  Wish there was a better gig in town! 
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