Well where do I start, this has got to be my lowest point I've got to today. Here I am yet again wide awake and have not had hardly any sleep at all !!!
I've bee like this for a few months now, I'm waking up absolutely drenched in sweat !!! And it looks like I've taken a bath/ shower in the bed!!! On top of that I'm either red hot or shaking where I'm freezing cold !!!!
I'm on entocort 6mg and have been since march, I don't feel Thierry doing anything for me as I'm now getting flares every two weeks!!!
For those of you who are regulars, I'm the one who had an emergency admission to hospital two weeks ago with reactive arthritis and prior to that was taken to hospital about
six weeks before with what they suspected was gall bladder problems but the scan showed nothing wrong !!!!
I'm feeling really I'll and very down in mood, I'm contemplating cutting down my steroids as I feel it's not doing anything for me other than giving me horrible side effects.
I'm going to contact my gi on Monday as I was discharged a fortnight ago but have not received a follow up appt off him yet!!!
There is talk of me going on mercapturine or methatrexate but when I tried azathiaprine I had a allergic reaction to it, so I don't really want to try mercapturine as their the same aren't they ???
I'm sorry for my long post but I'm really feeling sorry for myself right now, iv spent all day and night hugging the toilet yet again and I feel really done in !!!
Any advice / suggestions would be very much appreciated x