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First Remicade infusion tomorrow (Thursday)

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Crohn's Disease
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Posted 10/14/2010 6:57 AM (GMT 0)
So, I'm kind of nervous about my first infusion.  I'm not sure what to expect.  I've been on a long journey of bowel resection, infection, undiagnosed pain, hysterectomy and now CD flare up.  I guess the best word to discribe how I feel is tired.  It seems like every time I fight back from one issue and regain some strength, something else comes up.  I really am hoping for the best, but it's getting harder and harder to build up the strength to fight.  I haven't given up or stopped trying, but, darn it, I'm tired. 

If you can send me some good wishes, I'd appreciate it.

 

Posted 10/14/2010 7:11 AM (GMT 0)
I am getting my remicade tomorrow too but it is like my 95 th time. Which officially makes me a near $1,000,000 in remicade man. Hang in there and realize that what you have been through already is way harder than getting your remicade. I think that you will find it a lot easier than what you think and you find that you get to give yourself a reason to sit back and relax. Take a book, laptap, or i pod to occupy your time while you are there. Plan on your first infusion taking a little extra time because it is your first time and they may want to observe you a little while afterwards. Make sure and ask for a warm blanket because the remicade will make you a little bit cold because it is at room temp. Get to know your nurses because you are going to be working with them a lot from now on and it is good to know them. If you are unlucky, you will get to go back and see them every 4 weeks like I do. Plan on taking the evening off and maybe give yourself some room to rest for the next few days if needed. Sometimes I am just fine afterwards but usually the night of and the next day I get a little tired and sick. Good luck and let us know how it goes for you.
Posted 10/14/2010 9:04 AM (GMT 0)
wishing you all the very best for your first infusion on Thursday - I SO know what you mean about feeling SO tired and hope the remicade helps bring you into a good place where you don't feel SO tired :)

{{{{hugs}}}

yeah   yeah yeah yeah

Posted 10/14/2010 12:47 PM (GMT 0)
best of luck with your first infusion.

B
Posted 10/14/2010 2:28 PM (GMT 0)
Thank you for the great advice and good wishes.  I have a good book I'm wanting to finish and a packet of info to read regarding my daughter's high school graduation...cap and gown, announcements, etc.  That should keep me busy.  The warm blanket sounds like a great idea.  I do get cold easily.  I haven't planned anything for this evening and very little for tomorrow.  In fact, I think I will email my hubby and ask if he can take care of dinner tonight. :)  I did not sleep well last night, so maybe I can snooze today.  I'm off on another adventure. :)
Posted 10/14/2010 9:19 PM (GMT 0)
I, myself, got my second infusion this past tuesday.  Took forever because it didn't want to flow in that vein.  No pain no problems (mild sides) didn't get cold.  I keep taking stuff to do and we end up chatting most of the time.  It's always a different group.  I go back for the third loading dose on the 16th of next month.
Posted 10/14/2010 10:30 PM (GMT 0)
Good luck! I got my first infusion last week and it's made me so much better than I've been feeling since March! I still have pain and fatigue and all of that but the nausea has stopped along with lots of other things. I'm actually looking forward to my second infusion next week. (I was on Remicade around 5-6 years ago but just short term, but it made me nervous that the Remicade wasn't going to work)

I brought a portable dvd player and dvds with me :) Though the nurse wanted to watch too so I was nice and put it in their small tiny tv. My doctor's office does it, I kinda wish I was at an infusion place like when I did it last time so that there would be other people around to talk to, but that's okay.

My first time they kept me an extra hour after the infusion. I also felt tired/sluggish that night. But so far it seems to be helping, hope it does the same for you!
Posted 10/15/2010 12:49 AM (GMT 0)
Good luck with your infusion! Its been a miracle drug for me. Started October last year and have lived a completely different life since - - a HEALTHY life!

best of luck.

Posted 10/15/2010 3:25 AM (GMT 0)
My infusion went really well today.  It took about three hours and I spent the whole time chatting with the nurse.  She was awesome!  I came home and took a nap and I actually feel pretty good.  I have a headache, but I get them all the time.  I'm very relieved that things went well.  I'm looking forward to seeing how I feel after the second and third infusions. 

Thank you all for your good wishes and suggestions.  It really helps to hear from people who have been through this.

Posted 10/15/2010 9:34 AM (GMT 0)
Good Luck! Hope you feel better soon.
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