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Fatigue and sleep??

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Crohn's Disease
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Posted 10/17/2010 4:38 AM (GMT 0)
I was wondering how many hours of sleep per night on average do you all get?  Do you notice a lower rate of fatigue based on a certain number of hours of sleep?  I try to get anywhere from 6-10 hours based on if I had to take pain meds late at night (they keep me awake) or times awake throughout the night etc.  It seems no matter how much I sleep I am still fatigued and my labwork incl my iron is all normal. 

Granted at this moment in time I am exhausted only slept about 3 hours last night went to bed at 11 but had to be up at 6:30 to get ready to bring my step son for his PSATs.  I had a horrid time trying to fall asleep...some nights especially with my muscle relaxer I have a hard time keeping my eyes open more than 1 hour after I take it it seems also on nights I know I need to be up at a certain time I wake up 2-3 hours before I need to and am unable to fall back to sleep which doesnt help the situation. 

Anyone have any thoughts as to why I am still so fatigued even when I get 8-10 hrs of sleep?  This also concerns me where as I want to have my own child(ren) some day and fear the fatigue come that

Posted 10/17/2010 4:45 AM (GMT 0)
I have been very fatigued for over a month. I just had some labwork done...I'm anemic and my Vita D is very low. I have to start taking iron and 50,000 IU of vita D. I am really tired of being tired.... I sleep at least 10 hrs a day and often nap about 2-4 hours too. I'm not even working right now..or I don't know what I would do. I wonder if the vita D deficiency is making me so tired.
Posted 10/17/2010 5:14 AM (GMT 0)
Constantly exhausted... Well, not during the mid-day, at least not every mid-day. But, tonight at 8pm I was out with a friend and it felt like it was past midnight! I sleep at least 9 hrs each night too. Sometimes gut discomfort keeps me awake. I do battle anemia and iron infusions help. but, I am never "like I used to be" even when my iron levels are normal.
Posted 10/17/2010 5:35 AM (GMT 0)
I cannot tolerate the OTC iron pills as is so I do as my GI instructed by crushing them up and mixing them with something (I use apple sauce). if that didnt work I would have needed a script type then onto the infusions but my iron levels aare usually normal but at times they border anemia. Maybe it is part of the calcium thing it was the ONLY low blood level on me...will have to add that to the list to ask the GI tuesday...gosh he is going to think I am a pain with all my questions
Posted 10/17/2010 1:05 PM (GMT 0)
If your iron stores test (Ferritin) is normal they are not going to give you an infusion. Fatigue in my opinion is just part of having Crohns. I am fatigued quit a bit. I am good if I can sleep at least 7 hours a night. And that is usually my goal. But I also wake up some in the night, and if I have to get up for work, it can sometimes be difficult to fall back to sleep. I am currently in remission, so I would just say its part of the disease.
Posted 10/17/2010 3:10 PM (GMT 0)
When my Crohn's is active, I'm always soooooooo fatigued! I sleep like 10 hours a night AND take a 2 hour nap, which was what I was doing this summer before I started on the Prednisone and when I tapered down enough the Prednisone wasn't keeping me up all night.

Right now, I average 5 - 6 hours a night on a good day and 3-4 on a bad day. Which is not good, but I've always had the WORST insomnia since I took my first course of Prednisone (at 18) and it's only gotten worse since the last one. I'm always tired, but I just can't seem to fall asleep no matter what I do. I wish for the fatigue sometimes... rolleyes
Posted 10/17/2010 3:34 PM (GMT 0)
I sleep 12 hours.
If I sleep less than that I am exhausted :(
Posted 10/17/2010 3:34 PM (GMT 0)
i am fatigued all the time- especially during this recent flare. I have a young child and know it can be hard to manage but u will find a way if u decide to go ahead and have children of your own. I sleep about 7-8 hrs a night and nap about 1-2 hours a day and still i am tired. the pred causes insomnia for me some nights, not all nights, and those days are the worse because i didnt get my regular sleep. before this flare, i was only on imuran. i have complained for many years, during which i was in remission, that i need a lot of sleep and i sleep very deeply. dr's never had any input- they just said it was the way i am made... well i didnt notice it until after my DX when I was 20... i need so much sleep and am tired vey easily.... even during remission, so my thought is that it is a part of the disease... we have to adjust to it, get as much sleep as we can, because the fatigue is worse in my experience without a good nights sleep.

best of luck

B
Posted 10/17/2010 8:00 PM (GMT 0)
It is really more important when you sleep vs. how much. The best sleep is from 10pm to 6am for best possible liver cleansing. Too much sleep can be worse than too little sleep sometimes. Many people with Crohn's disease improved tremendously just be sleeping right and changing your diet.

All the best, Inna

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Post Edited By Moderator (Nanners) : 10/18/2010 7:04:37 AM (GMT-6)

Posted 10/18/2010 12:26 PM (GMT 0)
I'm fatigued all the time but I keep pushing myself to stay awake.
Posted 10/18/2010 3:21 PM (GMT 0)
I'm in remission and fatigued all the time, even though my iron, vit d, etc. are in normal range. On weekdays, I usually get 6-8 hours per night and a couple hour nap in the afternoons. During the weekends, I get more than that. I sometimes nod off in class as well....oops.
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