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Out of remission?

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Crohn's Disease
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Posted 12/21/2010 1:05 AM (GMT 0)
I was dx in 2003 and went into remission after about 6 months. I've been in remission ever since. I'm currently on Apriso (4/day) to keep me in remission. about 3 weeks ago (during a period of high stress), I started having diarrhea 4-5 times a day. Last week, it increased to 10-15 times/day and has stayed at that level. Four days ago, the blood started. What's weird is it's not mixed with the diarrhea. It always comes after. It's between dark red and bright red. Sometimes it's just a little when I wipe, sometimes it's enough to color all the water red. But it's there every time I sit on the toilet. I'm not having any anal pain, just pressure. I am having abdominal cramping, but it's not constant. I guess I'm just hoping that maybe this is severe IBS and not the Crohn's coming back. My thought is the blood is from internal hemmies. Does that sound reasonable? Am I just in denial?
Posted 12/21/2010 1:18 AM (GMT 0)
I think you're in denial =)

When did you see your GI last? I was in remission for a couple of years and a period of high stress kicked me back into active flaring. It sucks how much stress affects this disease.

Go see your GI. You've lived what it's like to be in remission - you don't want to live like this for long. He/She may just add another drug to your regimine and it kick you back into remission. They might also want to do a scope and just see what is going on...
Posted 12/21/2010 1:24 AM (GMT 0)
I haven't seen my GI in almost a year, I think? I did call last week to make an appointment and couldn't get in until mid-January. I called back today and explained that I'm bleeding quite a bit (in my opinion) and they got me an appointment for this Wednesday. I'm scared by the amount of blood I'm seeing. I'm a little scared about cancer, because I didn't bleed this much with my other flare, but that's probably just paranoia on my part.
Posted 12/21/2010 2:14 AM (GMT 0)
I've found that my disease doesn't always manifest itself the same way each flare. I have been in remission twice now and when I flared back after a period of remission, it looked different than the time before. You know? So don't assume the bleeding is something other than flaring just because you didn't have it before. Your disease could be in a different area now.

Glad they got you in quickly!
Posted 12/21/2010 2:30 AM (GMT 0)
First of all, I think it's very encouraging to see that you've been in remission for 7 yrs. only using masalamine.

There are many other medications yet for you to progress to if necessary. Did you have a difinitive Crohn's diagnosis? Could you explain where your Crohn's is located? I think you should certainly get in to see your G.I. right away. 

Posted 12/21/2010 12:17 PM (GMT 0)
I did have a definitive CD dx. I also had a scope a year or two ago when I was having some minor problems and the biopsy showed 'quiescent' crohn's (in remission) so he ruled it IBS at that time. When the CD was active, it was in my terminal ileum. At that time, I was on asacol, imuran, pred. I think that's it. I was off meds completely up until last year. He put me on apriso preventatively. I would think if the blood was coming from that high up, it would be black, right? I haven't seen any black at all.
Posted 12/21/2010 2:19 PM (GMT 0)
If its bright red blood its usually internal hemmoroids. But you mentioned some darker blood, so I think you best discuss this with your doc. Also with this disease you should be on some type of maintenance med at all times. I am currently in remission myself, but I am still on my meds. Good luck at the docs!
Posted 12/23/2010 2:03 PM (GMT 0)
I went to the doc and he gave me two options: start entocort and imuran now, or have a scope and make sure it's not IBS before taking drugs. I opted for the scope, which is scheduled for 1/7. In the meantime, he gave me some dicyclomine. He said it could be IBS but he won't know for sure until he scopes me.
Posted 12/23/2010 2:22 PM (GMT 0)
Keeping my fingers crossed that its just IBS triggered by the stress. Hugs and keep us posted on the scope results.
Posted 12/23/2010 3:08 PM (GMT 0)
I hope it is IBS too. Nice to see you here again. Merry Christmas!
Posted 12/24/2010 5:21 AM (GMT 0)
When you say you have been in remission for 7 years, does that mean you haven't had any diarrhea at all???? This chron's thing is still very new to me.
Posted 12/24/2010 1:50 PM (GMT 0)
No, I still had diarrhea, but only a couple times a week, with normal, formed stool the rest of the time. I had a couple scopes while in remission and there was no visible sign of the disease, but the biopsies showed crohn's.
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