Thank you all for your informative advice and welcomes-it feels great to be able to vent and speak to others who know how difficult this illness can be, especially as a parent of 2 kids with CD. My daughter has been sick on/off for the past 5 years, but when my son started getting sick this past summer, I was in complete denial that he too could have CD,even though my GI was convinced that it was. (We have strong family history, my Mom also has CD for the past 20 years) As other parents know, I wake up everyday wondering which child will not be feeling well; belly pain, nausea, diarrhea... my belly ususally hurts too from the worry and stress, it kills me to see my kids suffer. My son is down about
16 lbs. and pale and just tired and weak alot, we are considering starting Remicade soon b/c it's been 3 months on 6MP and steroids and he is still breaking thru with symptoms. We might give it another month to see if the 6Mp kicks in, but if things do not improve, we are looking at changes in tx. approach. BTW, it must have def. been what the kids have been eating this week, b/c both had BM's this am and not a trace of blood!!! Very weird??? I guess we will stay away from Dominoes for awhile! In the meantime, I have a 10 year old daughter that I am watching closely...I feel like it's just a matter of time.. i have her on probiotics too and pray everyday that this disease doesn't affect her too, so scary. Thank you all again for the wonderful support!!