Hello. I am somewhat of a new member, I use to be on here from 2001-2004. But I went into remission with a couple of flare-ups for the last couple of years. That is until last october when I got really sick. I have had crohn's since i was nine years old ( I am 38 Now). I have had 27 surgeries and probably been in the hospital over 100 times. I have 16 inches of my large bowel and 2/3 of my small bowel left. With my problems from the last 15 months, it has been really hard. Last October, I lost 20 pounds in one months, They put me in the hospital right after Christmas for 6 days. Crohn's was all in my large bowel, a little in my small bowel and had no blood in me. They put me on prednisone and TPN ( put a PICC in me) and sent me home because my surgerion told me surgery was to risky and would probably kill me.
Still did not feel great, two weeks later I was throwing up non-stop ( blood and all my insides). I went to ER and they found I was blocked in my small bowel, so they put tube down me and drained me out for a week. They sent me home and told me I need Remicade in a couple of weeks. So in February, I went in to have Remicade dose put in but one hour had a reaction. Got a fever, heartbeat went 180, turned bright red and could not stop shaking. They stopped it and put Antibotics in me.
Two weeks later, I was in dr. office because I developed lumps in stomach. They did a CT scan and found I had a Fistula between my Bladder and Small Bowel. The doctor opened up two holes in my stomach to let the abscesses drain out. That was in February since then 6 more holes have poked out my stomach. So now I have Eight holes at any given time draining.
I was put in the hospital again in December for no Blood, lost 10 pounds and doctors were going to start Humira. But while I was getting Blood put in me, I had a reaction .They ran Blood Test and found I had a major Infection in my blood. They gave me heavy Antibotics for a couple of days and sent me home with no Humira. Now next Wednesday, I go back in for more Blood and First two doses of Humira. At this point, I am going to try anything even Humira with open wounds because I don't have many options left. I can't have surgery, no more Remicade,tried so many pills that didn't work. My questions are: Has anybody taken Humira with open wounds, If you have taken or are taking Humira how is it for you and does anybody with a Bladder Fistula or that has had a Bladder Fistula had food come out with your pee ( I do and it is the most pain I have even had). Any advice would help. I shorted this down because like most of you it could turn into a book about your life with this disease. Thanks, Lou
*added some paragraphs to make it easier to read:)*
Post Edited By Moderator (Nanners) : 1/15/2011 9:46:35 AM (GMT-7)