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Crohn's Disease
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Posted 1/23/2011 8:26 AM (GMT 0)
Spent most of today battling a temperature that wasn't high enough to have me worried or going to hospital, but high enough to knock me around and make me feel completely miserable. I'm having a hard time getting it under control, too, so feel weary and exhausted and teary and simply horrible.

Accomplished:

* showered and dressed
* dishes
* cleaned up cat vomit from carpet rolleyes
* made ice cream
* deadheaded a few flowers
* watched / listened to some cricket
* shocked some church stuff!! shocked I think we can all die of amazement at this point.
* looked at more of the magazines I bought on Friday. I'm glad I did: there are some great housekeeping & DIY articles, as well as some wonderful craft ideas.

I feel bad because I haven't exercised for a while, but I think that's just going to have to wait. Any exertion feels terrible at this point.

It's early, but I think I might just feed the animals and crash in bed (or on floor) with the fan and watch / listen to the cricket.

btw, to the kind person who suggested borax for the ants, sorry I didn't get back to you. My brain only holds a few pieces of information at once, so I tend not to be able to reply to every person in a tlc thread each day. Anyway, thank you for your kind suggestion. I have thought of borax myself, but am afraid to try it because I have curious cats here and I'm afraid they would walk in it or taste it and make themselves ill (or kill themselves).

Anyway, night all.

Ivy.

ps. Becky, great that the n/g tube is out! And I can't believe they give you coke in hospital. Gosh... Is that usual, or did you request it specifically, because you'd been craving it?
Posted 1/23/2011 11:02 AM (GMT 0)
ivy, big hugs! i hate fevers, especially as it always seems to mean a shiny new infection! What kind of church stuff do you do? When i was diagnosed, i used to get mum to sneak in big mac meals for me. I was so hungry all the time cos my body had almost starved itself to death.

Becky - Great news on the ng tube!! I havent had one myself but they sound HORRIBLE! Fingers crossed you'll be home soon!

NCOT - Complete or not, it *should* have your latest MRI results in, which is the more valuable thing. Plus although our crohn's are not the same my hospital file is about 2 inches thick. I've only had crohn's for 5 years, so if your aint hitting two inches after 10 years it can be another red flag for a good GI! I frequently joke with my GI that they will start needing a crane to get my notes in!

Sunday TLC

* sort mum's ipod out - done/doing got 150 songs on might have to put more on

* eat
* drink
* remember to keep wearing my glasses when on the laptop so i dont get headaches!!
Posted 1/23/2011 4:31 PM (GMT 0)
I"M HOME!!!! I had breakfast then after a while they let me go since I wasn't nauseous or anything. tongue tongue tongue

My TLC's for today:
*take a shower and enjoy not having cords!
*take a nap in my comfy bed
*unpack bag (partially done already, most of it was clothes that just needed to be thrown into hamper, just have a few bathroom things to put away now)
*catch up on DVR's shows

That's it for today. Tomorrow I'll probably need to wash some clothes so I have comfy sweats to wear around the house.

Choc, yes NG tubes are HORRIBLE! My throat still hurts and my voice is super scratchy from it. While the tube is in, it feels like your throat has sandpaper in it.

Ivy, I requested the diet coke. Usually they give you juice (apple, grape, or cranberry) but they'll give you anything if you ask.
Also, have you tried vinegar or coffee for the ants. Both work ok to keep them out. You just have to spray or sprinkle where they're coming in and they won't cross the path where the vinegar or coffee is.
Posted 1/23/2011 4:50 PM (GMT 0)
Ivy, try some gasoline for your ants,if you know where they are coming from. works great.
Posted 1/23/2011 7:52 PM (GMT 0)
BECKY Welcome back home!!!! So pleased for you!!!! Nothing beats getting home after being the hospital. Enjoy your lovely warm comfy bed!
Posted 1/24/2011 3:01 AM (GMT 0)
Don't think my hospital notes are even an inch thick, but tbh I don't really know :-/

I wouldn't put it past them to lose the MRI results and have no trace of it. In fact, it's probably happened. </cynicism>

Bit depressed right now, so off after this post. I probably overtaxed my brain. Read some more of Fahrenheit 451, made several thousand brain cells implode with the effort of completing a "killer" sudoku puzzle, watched quite a lot of TV (Primeval, Casualty, Nurse Jackie), and cooked tonight's dinner. Is it just me, or is cooking a dinner a surprisingly knackering thing? I did sweet and sour chicken last week and I was ready to drop by the end of it, but the TV chefs make it look almost ridiculously simple and fast.

@Becky - welcome back to HW :p

PS: Is my Crohn's really serious enough to merit changing hospitals? I'm sick of the symptoms but I have no idea how bad the Crohn's really is. I just seem to have a unique case: almost absurdly mild for the first 5 years, then worsening, but still not really resembling the 'classic' Crohn's symptoms all that much. I sometimes feel like I don't really have Crohn's at all; that I have a different disease to you guys. But yeah, I know it's Crohn's. The diagnosis has never been disputed or changed. I'm sorry for my rambling. It's a 'dangerous' time for me and my emotions: late at night, feeling low and a bit rubbish, both physically and mentally. And ripe for overreacting to the smallest trigger.

I do feel better for having stopped to consider things and type them out. Thanks, guys, for putting up with me. I really will be off after this. Take care everyone.

Post Edited (NiceCupOfTea) : 1/23/2011 8:18:43 PM (GMT-7)

Posted 1/24/2011 3:24 AM (GMT 0)
YES!!!! You are sick enough to change hospitals. You are MORE than sick enough to change hospitals. You are complicated because you have several symptoms happening at once, and could really use a multi-disciplinary team (who KNOWS what they're doing) sorting you out.

Plus, staying at your current hospital hasn't exactly worked out for you. tbh, I am wondering whether you could benefit from a change in gp, too, not because he's a bad doctor (he sounds like a sweetie who really cares about you) but because you might benefit from a different personality and a dfferent approach just now.

And yes, cooking a meal is exhausting. Some meals are more taxing than others, which is why it's good to stick to easier things when you have low energy. Roast meat and steamed frozen veg are good in this respect: just bung the meat in the oven and steam the veg, and you're done.

I hope you feel happier in the morning, NCOT.

Becky, welcome home. We've been worried for you, so it's great to know that you're out and unplugged :-)

Ivy.
Posted 1/24/2011 10:08 AM (GMT 0)
NCOT yes i do think changing could be a good thing. A new GI is fresh eyes, plus we're hoping to get a GOOD gi who gives a monkeys about his patients so it would (hopefully) be starting again with your disease. It would probably mean repeating tests is scope, mri ect but thats a good thing. It means your GI will know whats happening with your disease.
Posted 1/24/2011 2:04 PM (GMT 0)
NCOT whenever I cook in the evening which is not often, by the end of it I am completely wiped out. You are so not alone there. I am in pain, you name it, but it kicks my butt everytime.

I also agree that maybe a hospital change will be good for you. The one you are going to right now doesn't seem to be taking proper care of you. Hugs!
Posted 1/24/2011 2:38 PM (GMT 0)
Thank you, guys. That helps a lot. I'll probably need further reassurance for my GP visit, but that's a fortnight away, so you're safe for a while yet <_< *hugs* :p

@ivy - Re what you said about changing GPs. My dad has suggested that, but so far I've always bottled out of it. There's at least 4 GPs at our health centre and I've not seen any of the others: I wouldn't know them if I fell over them. Two females, and two males I think. One of the males is the most senior GP of the place; he's the one I haven't seen. My dad sees him and, from his descriptions of him, he sounds like he could be sarcastic and disbelieving. I'm scared to speak to him, really :-/ ... I don't know anything about the two woman doctors, other than my mum saw one of them once and wasn't happy with her.

I probably should get an idea of what the other GPs are like. Maybe one day I even will... :-/

Re the comments about cooking: glad to see I'm not alone. It's not just the actual cooking: it's also the thinking of recipes, the buying of ingredients, the clearing up afterwards... I can understand why my mum moans about it as much as she does. I do try to help out, but in all honesty she does the vast majority of thinking up of dinners and then cooking them. I'm trying to do more on that front.
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