Anyone else with other diseases in addition with CD?

 This reply goes out to Becomingundone: I notice in one of your comments that you have Crohns related arthritis, and PSC-liver disease, just wondering how long you've had Crohns and PSC. I've had Crohns for about 10years now and this is the 2nd Gastro Doc I've been to within the past 11/2years. He now wants tp put me on the drug Humira for my Fistulas, but I've never been tested for PSC, as he is going on the results of my bloodwork, which have been minimally elevated and my bilirubin he sad was normal. But I've had itching and fatigue, and redplams, and I guess the only way to diagonise PSC is thru a liver biopsy. I started having these other systems probably I'm thinking for about the last 2years. Just wondering if your taking anything for the Crohns and the PSC? I'm wondering if a person can take 2 different kinds of meds to help for both. My GI Doctor seems to think I don't have faith in what he says, and I guess he's just relying on the bloodwork. I'm trying to get approved for the drug Humira and I am still kinda scared about taking this drug and wonder too if that is going to help the other problem as well. I guess they monitor you every 3months or so to make sure your doing okay and the 1st 2-injections are given at the hospital to make sure you don't have a bad reaction. So sorry for rambling on, but I just don't know what to expect. Thanks--Silvergriz

mirow, what did they put you on for the mild cardio? Do they know what caused it?

Roni, nothing estra at this point. I already take Beta blocker, ace inhibitor and calcium channel blockers. if things get worse or my symptoms get more frequent then they will look at other options .i have had 4 stress echos and 5 echos in the last 6 months, so they are just going to watch things for the next year or 2

mark_seattle said...
Crohn's dx age 13, panic disorder onset age 21, GERD age 25, glaucoma dx age 39, chronic nerve pain in extremeties for 2 years still undiagnosed after seeing 11 doctors. 

Have you had your B12 checked?  Low levels can cause nerve pain in extremeties.  Also if so, check the number if it's anywhere towards the low end of the normal scale, I'd suggest supplementation with oral methyl B12 at least 1000mcg, preferably 5000mcg sublingual.

I am diagnosed with Diffuse Jejuno ileitis, a Crohns type that app. 3 % is having. Am I the only one here?

I also have kidney cancer.

Roni, both the GI, the GP and the gastro all know my conditions. they are talking on a regular basis. cmy case management is difficult. in the end they said they are watching things very carefully. They also agree with what you said the remi class drugs are definately not to used for congestive heart failure. I do not have that, in fact heart has held up pretty well in all 5 different stress tests. but, yo are right it can be not good. so they are checking all the time. if they pull me off remicade, i am out of drugs and will need to go to a research hospital to see what else. i have blown through everything, except the newest one out.

right now the remi has gotten me back to feeling good and put on 15 lbs. but i know the crohn;s is there. i still get occasional pains just like before and i still run low hemoglobin (in the 10.5 to 11.4 range) so probably bleeding. oh yeah, the blood thinners start next and they all know the issues i have. But the GI said the brain (prevent stroke) is more important than the stomach.....