HUMIRA ( side effects)

Hi,yes I have had some of those symtpoms. I find that Nasonex and plain ole saline   drops helps with my sinuses,I sometimes get headaches,but honestly,it's mostly at work,so not sure if it's Humira related or not. I sometimes get a rash,I talked to my GIand a Humira rep and that is actually an "outcome",than reaction for most people. My face does get flushed at times,too.

Did you take your blood pressure? Hoe high,how low?? Sorry,that's the nurse coming out in me

Sometimes I get shakey/hot,but I did that before Humira.

Good luck,hang in there!!

Hi,

My son just took his second shot of Humira, and so far the only thing we 'think' might be a side effect is sneezing. He also has some nasal congestion. The problem is that we live in an area known for allergies and have been having high winds which of course just stirs stuff up even more. Not sure if it's the Humira or just the weather.

Crohn'snme, You sound just like me but, it started with sinuses the first month, then it went to headaches, and night sweats, and now this month its red flushed face. How long does it last?? I called my GI doctor and they didn't know it could take this long for someone to get the side effects, But I call the number on my humira and they said that it could take some people longer to get the side effects..


Ne Ne

Staci, I started getting crazy graphic nightmares after starting it. I don't sleep well...CD symptoms better tho

Mellie, I only lose sleep the first few days after my shot. I suppose its a fair trade because my CD symptoms are alot better.

me neither, just a bit of burning on injection, , well ok a lot of burning, but nothing else so far.. 3 months

I just got out of the hospital after about 10 days. I couldn't stand it anymore. Doctors ran ever test posible, and came up with nothing. I think I found a doctor that is willing to follow this through and figure out what this is. This is my second day home, and can already feel the burning in my arms, hands, and feet. Before I went into the hospital, I could barely walk my feet hurt so bad. I couldn't wear Tee-Shirts because the cloth felt like sand paper on raw skin.

I'm the same as Ides, and I'm now confirmed as a lupus patient. Now this isn't intended to scare you, but I wanted you to be aware.
A facial rash, or sunburn looking rash can be a sign of drug induced lupus. So I would get your doc to run some blood work, to check
your ANA levels, just to be on the safe side...
It's probably not connected, but I rather you were safe than sorry... Good luck Ne Ne.

Please whatever you do DO NOT take HUMIRA or an other drug that reduces your immune function. I took Humira for approx one year and I now am so ill and regret taking it. I now have to contend with whatever this drug did to me on top on my arthritis. Before I decided to take it I consulted with my dr and she stated that the risks involved were hype and that it was safe to take. Yes, it worked to reduce my joint inflammation for that year but it was not worth the price to pay.

Back in April 09 when I was on the drug for 9 months, I had developed severe shortness of breath and unable to walk. The cat scan showed no infection but I continued to get increasing worse. Within months I developed severe diarrhea, bloating, tender abdomen, and continued labored breathing. I struggled with this until January 2010, when I began coughing up chunky green colored phlegm and it was cultured and turned out that I contracted Klebsiella pnemonia and was very ill and had it the entire time. I was put on an antibiotic for this and was given numerous amounts of antibiotics. I felt somewhat better for a few weeks and then back to feeling sicker than ever with awful headaches, sinusitis, productive cough and back on more meds. I continued to struggle with GI issues and it was found that I had a dead gallbladder from the humira and it was removed in June 2010. The surgery helped with the GI issues but around this time I began to have awful headaches and bloody noses along with nasal discharge. In dec 2010 I was doing my daily nasal irrigation and I heard a "pop" and tilted my head and had about a cup of blood, pus and skin drop into the sink. Immediately I had a searing pain in my face that would shoot into my neck and I was in agony. Went to ENT a few days later and he stated that it was most likely a cyst and gave me pain killers. I continued to have massive pain and around jan 2010, I developed painful mouth sores on same side as the supposed cyst and my dentist said that I had an abscessed tooth so he pulled the tooth and my condition got worse. I developed swollen gums on that side along with a bigger painful sore that oozed pus. I am now awaiting a biopsy result. Basically, all of my drs just shrug and act clueless as to what to do bc of all the crap that has been going on medically since taking humira. My Rheumy, PCP, ENT, and infectious doc all have basically been pawing me off and telling me to go to a different doctor. This has been a nightmare that I cant wake up from.

This entire time I have barely able to work, to be a dad to my children, and a husband to my wife because of that toxic s$#t of a medication. The thing is that not many doctors know the real risks of taking this med. and they just brush you off. I know in my heart that this medication has ruined my health beyond repair and I am just waiting for the next disease to crop up. What? more infections, cancer. Trust me if go back in time I would not take this drug.

WOW strat1163 I am so sorry for all you have been through. I hope that each day treats you better than the previous one. I believe that Humira was the start of the worst for me also. ANd at my worst I too could not pick up my baby, be a husband, eat, barely even walk. My best to you and your family, stay strong!

I have been on Humira for almost 3 years and recently went from 2 shots a month to 1 shot a week. It has been nearly a month and the only difference I feel is fatigue and a slight difference in my personality. When I say that I feel less drive, but do not feel completely depressed. The drug has done great things for me regarding inflammation, mucus, pain, etc..But I still have an on-going fistula.(Isn`t that redundant, because it is there forever.) of course, everytime I take my shot, I think about long term effects. Then I remember how I was before I started taking the shots. We all are different when it comes to this disease. Where we live, weather, mold, water,...hence parasites ... each of us has to mold to our own treatments and what makes us better. That is the difficult part. Some of the medications that others mention, I have never heard of, s then I research them. I am fortunate to live in Canada and Pharmacare, otherwise I couldn`t imagine a cost of Humira. But I am frightened of the long term. I also get the blurry vision after I take a shot, and sometimes the shakes reak havock-but the one thing that scares me the most is dying. I have nightmares, I have so many fears about dying from Crohns. I have almost died 3 times from it. It scares the crap out of me. That is why I am on this forum...because listening to others that are suffering, that are reaching out, that make me feel like I can relate, I feel I am in the right place. I am sure alot of you can relate-when you are diagnosed your family and friends do not know how to act, do not know what to do and what to say. Please keep writing

I'm only 10 days out from that first Huge Humira dose. I felt just plain bizarre for a few days, I know that's not medical terminology. I've been experiencing sinus problems... sneezing, runny nose, and flu-like symptoms.. cramps, stomach upset and diarrhea for the past few days, Also a headache I can't kick. Any suggestions would be appreciated.