New Member Mickey123 - Intestinal endo

Yes, I had this diagnosis. But unfortunately it was almost too late. My PCP kept ignoring my complaints. When I finally went to the ER I had to have emergency surgery. 80% of my colon was necrotic. the endometriosis had strangled my colon and also attached to other organs. I had to have many, many surgeries over 3 years. I went through all kinds of complications and now have an ostomy. I went through alot of pain which I feel could have been avoided if my complaints hadn't been ignored. So, if you know you have this condition my advise would be to fight for tests to avoid the horror that I went through. I hope that this info can help someone else avoid complications.

*I made you a new post, so you could get more responses.  You posted to a post that was over 3 years old and members tend to avoid these, thinking they already responded*

Mickey, that's a shame. I'm sorry you had to deal with it when no one was listening. That does tend to happen, unfortunately. I hope you're doing well now.

I've had surgery to remove extensive endometriosis. My Crohn's was in remission at the time and they didn't mention anything about it strangling other organs. Guess I was lucky there!