HealingWell
Search Close Search
☰

WOO HOO!! got my GI to write me for LDN!

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/15/2011 5:28 PM (GMT 0)
At last, he caved! Go in with your research done and a willingness to admit that it might not work/have low expectations. I'm so amped. Please let this work please let this work...I'll keep you guys posted on how it goes!
Posted 3/15/2011 6:03 PM (GMT 0)
That's great Linn, I so hope it works for you too, but you have most definately have to load up your self with a lot of patience, because LDN is working slow for some and faster for others. And you may find that you'll get rid of symptoms gradually and may be not in the same order than others.

Sometimes it seems that LDN is bringing up candida symptoms to the surface. The candida may already be there prior to the treatment, but it seems LDN is bringing it to an overgrowth. You then need to take a stool test (no other tests is able to dectect candidiasis right) and get a good treatment for it. You can use the candida meds with LDN without a problem.(increased diarrhea is one of the candida symptoms)

Other times the LDN you're using may be too heavy for your stomach, many people are then changing to a transdermal cream. You put the cream on your armwrist every nite. That's all. (getting increased diarrhea is also a symptom when LDN capsules is wrong for you)..Read more at: www.ldnscience.org Lot's of luck, be well/ Bee

*activated your link*  :)

Post Edited By Moderator (Nanners) : 3/15/2011 12:56:26 PM (GMT-6)

Posted 3/16/2011 4:34 AM (GMT 0)
Great! I hope it works as well for you as it has for my daughter.
Posted 3/16/2011 1:41 PM (GMT 0)
BeeSting, thanks for mentioning the thing about the Candida. I stopped taking my LDN about a week ago because I just couldn't handle not sleeping. I have been on it since September, and I still have issues with not sleeping, and the vivid dreams just stressed me out because they seemed so real so I would be exhausted through out the day. Also I'm on two antibiotics right now so I'm have yeast problems anyways. So my body must just feel overloaded. There is also another reason I stopped but I'll spare ya the details : p I'm also on Humira, and so of course I know that they kind of fight each other,but I haven't noticed any changes in my Crohn's symptom, so I know Humira is doing it's job : ) I'm sure I will try it again in the future because it is a great drug for many. My brother just started taking it in combination with Remicade, but they lowered the dosage on his Remicade to hopefully get him off Remicade and just take LDN. His Crohn's has always been undercontrol since his diagnoses so I hope this works out for him~

Linn I wish you the best of luck! And happy to hear that your GI is working with you!
Posted 3/16/2011 3:23 PM (GMT 0)
BeeSting I sent you an email with a few questions :)
Posted 3/16/2011 4:51 PM (GMT 0)
Hey BeeSting...
thanks for mentioning the candida thing. i'm trying to head this off at the pass by eating a TON of plain yogurt and taking culturelle until i'm blue in the face....i had a colonoscopy on thursday and my guts are STILL messed up from the prep...i think it disrupted the happy equilibrium i had going on in there, now its back to the yogurt and grape juice diet until things chill out.

i just cannot wait to hopefully get myself off this prednisone....i have to see my ex-boyfriend at the end of april and nothing says "i'm so glad i dumped you" like a big fat moonface....UGH. i hate pred.
Posted 3/22/2011 4:30 PM (GMT 0)
I had to switch to LDN creme to get past the candida issue. Worked well.
It also allowed me to rachet back the dose to 3mg and work up, because i also had the sleep issues. Interestingly, backing up to 3 and working forward to 4.5 over 2 weeks totally cured the sleep issue for me.
Posted 3/23/2011 7:14 PM (GMT 0)
Linn, I hope you read what janicea is suggesting, use the transdermal cream. LDN capsules or pills don't suit everybody, I have seen quite a few examples that LDN transdermal cream will give more symptom relief. I have been informed that by using the transdermal cream you just have to put it on your inner arm wrist, close to your hand, and change the spots where you put it every night, some may react by redness or itching if sensitive.

I totally understand your eager of ridding prednisone. This medicine, used over a long time span like half a year or more is quite a big risk. Imagine the bones we'll have when middleaged if we continue to chew this candy! Not to mention our gut lines damage. LDN has provided me a low use of prednisone. Almost 4 years on LDN and twice a year flaring short and very mild flares lasting for a week or two while on a very low dose prednisone and low dose naltrexone. My prednisone use is in all two months a year untill now. Most of the time at 10.0 mg and 5.0 mg.

I think it's possible to get the transdermal cream if you live in the US or the UK. Haven't heard of any other contries making this.


To reduce your inflammation even more:
omega 3 with DHEA and DPA, best is krill oil.
and 800 mg curcumin pills every day.
Posted 3/23/2011 9:41 PM (GMT 0)
Hello I am so sorry to get into this post with a question but I am new to this site and I have had chrons for two years now and I am wondering what is LDN????
Posted 3/23/2011 10:41 PM (GMT 0)
Glad to hear that LDN cream skirts the candida issue.  I just switched from LDN pills.  I've only been on the cream for 5 days so don't have any results to report yet, but I am hoping for the best.  I alternate arms every night and rub it in between my wrist and elbow on the inside of my arm.  I wonder how much LDN remains on my hand instead of my arm since I wash my hands after.
Posted 3/24/2011 11:57 AM (GMT 0)
How does a dr. write a prescription for LDN cream, and do you have to send the prescription away to get it filled?
Posted 3/24/2011 12:11 PM (GMT 0)
I called Skip's Pharmacy and they told me how the prescription should be written.
Posted 3/25/2011 4:10 AM (GMT 0)

LDN means "low dose naltrexone." It appears to help with Crohn's, with no serious side effects. It is still under investigation...a second clinical trial just completed. But some of us are going ahead with it before more research is done, because it at least seems to be so safe...my daughter is using it.

Naltrexone is not a new med. It has been around for ages, used to treat drug addicts. So its side effects are well known. However, the dose used to treat Crohn's is much lower, so it is referred to as "low dose" naltrexone. Because of the low dosage, we don't see the side effects associated with the much higher naltrexone dosage for addicts.

You can find out more info in checking other threads about LDN on HealingWell and also on the following website:

www.lowdosenaltrexone.org   

Posted 3/25/2011 6:05 PM (GMT 0)
Just wanted to send a little update on my LDN adventure

So, I've been doing the LDN for about a week now, and I feel quite a bit better. I'm not sure if this is attributable to all the prednisone i've been taking, but today was my first try at 30 mg (from 40 mg) so we shall see how it holds up.

as far as candida, i haven't had any problems yet but i am also fanatical about probiotics and yogurt on a daily basis so I'm hoping that skirts the issue.

one thing i will note is, the crazy dreams thing is very real. when i heard about it at first i thought "eh, probably doesn't happen to everyone".
it's not like i'm having nightmares, just very very vivid, "creative" dreams. that i remember bits of in the morning.

i'll keep posting as the prednisone gets whittled down....wish me luck...gahhhh.
Posted 3/25/2011 8:26 PM (GMT 0)
Best of luck to you. I started LDN in November of '08 and it's still doing it's thing for me. Currently, it's the only drug I'm on!

Miss
Posted 3/26/2011 6:45 PM (GMT 0)
I just started 20mg of prednizone. I have been on LDN cream for 8 days. Can I continue to take LDN cream or do I have to wait until I taper down to 10 mg.
Posted 3/26/2011 11:31 PM (GMT 0)
Cannynancy, np, just continue the pred tapering and add LDN today. I have tried doses from 40 mg and used 3 mg og LDN with it with no problem at all. The reason why we've alway told everyone to avoid prednisone and LDN together is that it was suspected to work against each other, the combination was explained like this: as pred is suppressing the immune system and they thought ldn was doing the opposite, boosting it, they could hardly work as a good couple together. Well, now we have learned more what LDN is doing. LDN is just blocking some part of the cells so that the body is producing much more endorphines than it's doing prior to LDN. Those endorphines is making the immune system fight better due to all kind of auto immune diseases which is having inflammation as one of the reactions in the body. If our immune system all of a sudden is starting to fight a disease that it could not fight earlier, then LDN should be a no. 1 choice. Still it's not the case. I think many of us need time to try it.

I also have experienced the very creative, funny dreams while I started using LDN. I miss the dreams. Experienced those while upping the dose of LDN, first the first nights, then when I upped from 3.o mg to 4.5 mg. I have been using up to 6.0 mg, but now I am back at 3.0 mg. I think I am in remission. :-)
Posted 3/27/2011 3:41 PM (GMT 0)
Thanks BeeSting. I will go back on the LDN cream tonight. I really want the LDN cream to work for me. I switched from the pills because of possible absorption issues and to avoid any problems with possible candida
Still waiting to see an improvement from the prednisone. I'm not sure what to expect, but I hope it's something dramatic.
I'm so impressed with your knowledge!
Posted 3/27/2011 3:46 PM (GMT 0)
Cannynancy, you may even have to up your Pred dosage to get this flare quieted down. Maybe 20 mg isn't enough for you. If you don't feel some improvement soon, I would discuss that with your doc. Good luck!
Posted 3/27/2011 5:00 PM (GMT 0)
hmmph....of course just when things start going well for me....
....i had a massive back spasm and wound up in the ER for spasmolytics and pain meds....now i'm afraid to take the LDN because it could cancel out some of the dilaudid they gave me for the pain (even they they also gave me diazepam for the spas itself)

anyone have any experience taking LDN with morphine? I know the high dose LDN would obviously completely cancel morphine, but what about our teeny-tiny doses?

thanks
✚ New Topic ✚ Reply