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Some people should mind their own business(Crohns Related)

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Crohn's Disease
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Posted 5/16/2011 3:59 PM (GMT 0)
I hate it when people that don't live with me and don't know what I've gone through or go through try to judge me and tell me what I should and shouldn't do. I had been sick with fistulas and flare ups for 2 years and was not able to exercise. After I started Humira I have been more active and exercise about 1 hour a day but I also gained almost 20 pounds after I started Humira and have been struggling to get it off. Even now some days I'm stuck in the bathroom and have horrible abdominal pain usually during my period that week of my period I barely exercise because I can't. Well people that don't live with me, don't know that. I don't expect them to know but whenever they come they don't ask me how I'm doing, they just start telling me I should exercise I try to explain to them that I do and explain to them the whole story but they think I'm making excuses and say" Well if you're exercising you're not doing enough because it looks like you've gained weight." Ugh, it just infuriates me! I just needed to vent sometimes I feel I should just not talk to a lot of my family so I don't have to deal with this type of stuff sad
Posted 5/16/2011 4:35 PM (GMT 0)
You're absolutely right. They should mind their own business. Next time one of them criticizes you, just say, very firmly--and with no shame or guilt whatsoever--"I'm on a powerful drug that causes weight gain. I'd love to be exercising more, but I'm often in terrible pain. I'll be happy to tell you all the gory details, if you think it will help you understand." And then watch how fast they suddenly don't want to discuss anything. Every time they mention something about your weight, volunteer to tell them all about your disease. After a couple of times, they'll stop saying anything. :)
Posted 5/16/2011 5:49 PM (GMT 0)
I know what you mean. I hate it when people say to me, "you should exercise more. you were so healthy when you were exercising." I was but they have it backwards. I was feeling fine and could exercise. Now I have a flare up and am in too much pain to exercise. Imagine, if we only had to exercise in order to get healthy.
Posted 5/16/2011 7:16 PM (GMT 0)
I agree with you - I would like to exercise more as I used to love squash and running yet now even walking is uncomfortable with my crohns bulges plus a prolapse so exercise is just not fun. Very frustrating indeed!
Posted 5/16/2011 9:54 PM (GMT 0)
Argh. That must be incredibly aggravating. I feel for you.

Some people should just concentrate more on their own lives, frankly, instead of judging other people (she says, judgementally) :-)
Posted 5/17/2011 1:00 AM (GMT 0)
Goodness, if people could only walk in some of the shoes of people with chronic diseases, they would know. Naglingscate couldn't have said it any better.
My favorite was when my early 30's PCP told me I could go on the South Beach diet and lose 10 pounds in 2 weeks. I told her I had a roaring case of diarrhea for 10 weeks and lost a grand total of 3 pounds, what the hell would make her think the south beach diet would work for me??? LOL.... She shut up. Don't worry too much about the weight gain. Your family should be more concerned about your total health not a little weight gain.
Posted 5/17/2011 2:01 AM (GMT 0)
Sorry to hear about people sticking their nose in your business. But I have the problem the other way, I only weight 94 pounds right now. I get do you have cancer, are you a druggie, or my favorite you need to eat more. Yeah i would eat more if I was not in pain all the time and my food did not pass thru me so fast that it feels like I put it in my mouth and I am already in the bathroom. Hang in there and Good Luck, Mr.D
Posted 5/17/2011 3:04 AM (GMT 0)
I would like to type some choice words in your support but i don't think I am allowed to use that kind of language on this forum.  Take the high ground if you can and look down on the low-life who talk to you that way.  Solidarity with ya
Posted 5/17/2011 4:12 PM (GMT 0)
Show them your fistula, seeing that alone should shut them up...I know it sounds extream (especially if it's in a very private area) but unfortunatley some people need to "see it" to understand it. Just know that their opinions don't mean squat ifyou don't let it and people like that aren't worth getting upset over. Feel better soon and be patient with the weight loss, you'll get there.
Posted 5/18/2011 8:21 PM (GMT 0)
I've had a few people comment about what I eat or that I don't have to watch or count my calories..."I wish I could eat whatever I wanted and not gain weight." I'd gladly trade this disease for how ever many pounds these folks wanted to lose.
Posted 5/18/2011 9:38 PM (GMT 0)
I have a similar prob. But its with me not weighing enough. I constantly hear how I need to eat or how I've been losing weight(like I dont already know) . It does get frustrating sometimes I dont even wanna go around people
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