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"Burning" Question

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Crohn's Disease
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Posted 5/19/2011 2:18 AM (GMT 0)
Ever since my two resections in 2008 I have had issues with short bowel syndrome. Several times throughout the year (especially when the heat and humidity get high, which is often in Arkansas), I get a lot of perianal burning during and after a movement. The best way to describe it is imagine a piece of prickly-pear cactus stuck between your cheeks and lit on fire. Sounds fun, right?

I have talked to my doctor about it several times and we have ruled out a fissure or fistula each time. He has determined that it is a fungal infection. He has prescribed Nystatin Cream (which helped for the first two years), Proctofoam HC, and most recently Econazole Cream. My doctor wanted me to use the Econazole twice a day for two weeks (I've been using it for almost a week). I'm still having a lot of burning throughout the day.

Any other suggestions?

Thanks in advance.
Posted 5/19/2011 2:54 PM (GMT 0)
I have to make sure I am really clean afterwards or I get similar issues. I have started using wet wipes on those bad days to make sure no lingering stuff is there to irritate my already irritated skin on my bottom. That and patting dry vs wiping. Hugs!
Posted 5/19/2011 2:55 PM (GMT 0)
By the way its the bile acid burning your skin. Hugs!
Posted 5/19/2011 11:24 PM (GMT 0)
I can relate to your pain. Mine was a fissure that went through to the muscle wall.

Sorry, I don't know about fungal infections so this might not be appropriate for them, but have you tried sitz baths? They might soothe the pain.
Posted 5/20/2011 4:34 PM (GMT 0)
The only thing that helps me when my butt is burning intensely from bile is Calmoseptine. It's a cream that comes in a big tube. Other ointments do very little for me, but this stuff helps a lot. Also I agree that soaking your poor butt (in my case, sometimes my poor blistery butt) in nice warm water makes a huge difference in the level of pain you're experiencing. Good luck!
Posted 5/22/2011 2:06 AM (GMT 0)
I know the pain you're talking about but I had a fissure. I used to cry of the pain it felt like little pieces of glass. Sometimes I would put preparation H on it and sometimes it would cool down a bit.
Posted 5/23/2011 2:50 AM (GMT 0)
I had burning and the GI prescibed some med that was like orange tang powder you drank mixed in juice to reduce the acid in the bile or something. It didn't work for me, so for the life of me I can't remember the details but it might be something to check into.
Posted 5/26/2011 9:00 PM (GMT 0)
I wanted to share the latest information on my "burning" question. I have been to the doctor twice and spoken with his nurse multiple times over the last 6 weeks. The doc still says that it is definitely fungal. He had me try Nystatin Cream (which helped for a while), Proctofoam HC (helped with pain but not underlying cause), Econazole Cream (short lived relief), and now we are trying a multi-prong attack. They are now having me take Fluconazole (Diflucan) and a mix of Nystatin Cream with Destin Cream (Diaper Rash Ointment). This should be an interesting attempt. I hadn't even thought of using a diaper rash ointment.

I asked about increasing my Cholestyramine Powder dosage. I currently take 1/2 scoop mixed with water in the morning. According to the container, the regular dosage is a full scoop. Doc decided not to make any changes to the dosage at this point.
Posted 5/27/2011 4:11 PM (GMT 0)
I use Desitin too. I stole it from my grandson. haha...
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