HealingWell
Search Close Search
☰

Should I be feeling THIS bad?!

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/3/2011 12:35 PM (GMT 0)
Hey everyone! It's been a while since I've posted on here. I just haven't felt up to it really.

But I do have a question... I know that Crohn's affects everyone differently, in different ways.

For the past 6 months or so, I had been getting really sick around my period. Horrible pain, vomitting, etc. I had been to the ER a few times because of it, they've done x-rays, ct scans, blood work, urine work etc.

For the past month, I have been feeling this way pretty much every day, but now I have really bad back pain to add to the mix.

I just had an ultrasound done Wednesday, and I'm waiting for the results. The last doctor I saw doesn't seem to think my problems are Crohns's related. Other people are telling me it's just something I need to "deal with"

So I guess my question is, should I be feeling this bad all the time??

I just have a feeling that there's something really wrong, but I feel like I'm going crazy, and that no one believes me :(

Posted 6/3/2011 1:23 PM (GMT 0)
Well its pretty common for us female Crohnies to have it bad every month around that special time. So you are not alone there.

But feeling bad every single day means either your diseasse is not controlled or possibly its not Crohns related.

I think you need to wait to see the test results and go from there. There are some Crohnies who also suffer with IBS also(I am one). And alot of stress can really irritate things too. Hugs!
Posted 6/3/2011 6:50 PM (GMT 0)
One think I'm learning after 17 years with this nasty disease is... trust your gut! Literally. If you feel that it's something more than just the Crohn's, push till you get an answer. I didn't, and now have nasty fistulas that are out of control and they can't get my Crohn's IN control...but I often wonder if I'd pushed harder and started Remicade sooner... or whatever, that it may be a better situation now. Yes, my time of the month is horrible... but I'd push to get more answers. Trust your gut and follow your instinct. Always. You have to be your own advocate for your own health... Docs are so busy, they need the nudges sometimes. That's my 2 cents. Good luck... and I do hope they get you feeling better soon.
Posted 6/3/2011 7:12 PM (GMT 0)
Keep a pen and paper by your bed and write down what you feel and where your feel like garbage. log all your symptoms for at least a week. crohnies know everything by how and where they feel (ie: left quadrant, right quadrant and so on)

i agree with the others, you got to trust your gut and how things have been for you in the past...

if things get real dicy call your GI, better to be safe than sorry and have peace of mind. and a trip to your GI's office is and always will be more pleasant than a trip to the ER.
Posted 6/4/2011 12:29 AM (GMT 0)
Thanks all.

I just feel so helpless. I hate waiting around for results!
I think I will be more upset if they DON'T find anything! I just want to find out what's wrong and get it taken care of!

My quality of life has gone down dramatically in the past couple of months. I never feel like going out and doing things, I've hardly felt like eating, the medicine the doctor gave me for pain leaves me in a fog. I've become really irritable and find myself snapping at people. It's like I've become a completely different person, and I hate it!
Posted 6/4/2011 1:30 AM (GMT 0)
Hey Tabicat, sorry to hear you are feeling so poorly! I too feel worse around that time of the month, but it is too bad you are feeling so ill all of the time.

I started getting really bad pain a few weeks ago, the back pain in particular was the worst. I got a CT and found out I have kidney stones! I saw you said you had a CT but maybe because they were looking specifically at your colon they missed something? They think the kidney stones are probably a build up from the mass medication I take, but they want to wait for me to pass another one and collect it and test it. (lucky me!)

I know exactly how it feels when no one really believes you and just says it is regular crohn's pain, and that is sooooo frusturating. That has happened to me twice at the ER, and one time they said it was a bladder infection, and the second time they said it was just Crohn's pain. Turns out the "bladder infection" was the start of fistula, and the "crohn's pain" was kidney stones!! I know they try to do everything they can, but it is really difficult sometimes, especially when they make you feel stupid or weak for coming in.

Sorry to hear about your hard time, it sucks when it starts to affect your life so much. Have you considered biologics? I just had my third remicade infusion, and although it started off rough, I am starting to feel better!

If you have that feeling that something is wrong, then trust your intuition and keep going until you find an answer! Hope you start to feel better soon and get back to your normal happy self yeah
Posted 6/4/2011 6:09 PM (GMT 0)
Sorry about the difficulties you're going through.
It's not uncommon for us Crohnies to take an antidepressant. We can get very down at times and they can really help.
I take a low dose of Celexa and my mood and anxiety has vastly improved. It's sometimes a lot dealing with Crohn's as well as the other things life throws at us.
Posted 6/5/2011 6:35 PM (GMT 0)
I really don't think I'm depressed. I'm just tired of feeling awful!
I do wonder, though, if anti depressants would work for me?
✚ New Topic ✚ Reply