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Crohn's Disease and Lupus

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Crohn's Disease
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Posted 4/30/2011 12:29 AM (GMT 0)
I was diagnosed with Crohn's 3 weeks ago by my GI doctor.
He told me that the blood tests and biopsies came back negative, but he still thinks it's crohn's based on everything he saw in the endoscopy and colonoscopy.

But he told me that I should see a Rheumatologist not only for issues with joints and such, but also to get tested for Lupus because I guess Lupus can mimic the GI symptoms Crohn's is responsible for?

Has anyone experienced this? Has anyone gotten Crohn's then Lupus? Or has anyone have been suspected of Crohn's and ended up having Lupus?

Unless i misheard the doctor...I'm a little concerned.

My insurance kicks in again on the 1st, which isn't far...so soon I'll be able to actually get seen again.
Posted 4/30/2011 1:56 AM (GMT 0)
I have IBD I have heard both Crohn's and UC so I just call it IBD :P

Well my doc has suspected that I have Lupus but we have not been able to confirm that except for a positive ANA test.

IMO if you have one auto immune disease you are more likely to get another one :(
Posted 4/30/2011 2:43 AM (GMT 0)
i get so worried about it...i feel like i'm going to die any day now
Posted 4/30/2011 11:22 AM (GMT 0)
Why is your doc suspecting lupus ?


I see that you just got diagnosed, the first days are very hard, its a big shock for you to be diagnosed with a illness that will affect you for the rest of your live.
And its normal to have anxiety about it. But trust me it will get easier as you go along. It does not seem like it at first but you need to work through that.

Doctors can also make small things seem VERY scary by not giving us the right info, I have had that happen more then once.
Last time I met with my Rheumatologist he said that he heard a extra sound in my heart and told me that it could be a blockage but I should not worry because it was very small !
Well I did worry I worried a lot, until I saw the heart specialist. And guess what there is nothing wrong with my heart :) The sound the Rheumatologist was hearing was a very normal sound for a person my age, and my heart could not be better..

I know its hard getting on with life when the doc is saying that there is something serious going on in your body, but try to do it any way.
Stress has a bad affect on all auto immune diseases so if you worry to much you are not helping your body.

You know our bodies are made to live so we will not just drop dead one day with out something serious being wrong.

Hugs to your Adam, hope you get well soon and that the docs can figure out what is going on with your body
Posted 4/30/2011 10:10 PM (GMT 0)
Lupus and Crohn's do have some cross over symptoms but Lupus also has some common sypmtoms that are not found in Crohn's. There is a lost of the common symptoms of the Lupus forum which you may find helpful.

Lupus can be dx through a blood test but this isn't always accurate as it can show a false positive or negative so a rheumy will also do other tests and take into account those as well.

If someone does have Lupus then the treatment/drugs are very similar to that for treating Crohn's.
Posted 5/1/2011 1:04 AM (GMT 0)
i see. he says look into Lupus because I have a lot of redness in my skin, and that "butterfly" rash on my face, although its not mild. I have a lot of the symptoms of Lupus, and I have some neurological stuff going on as well and i guess crohn's isn't a big neurological symptom causer?
Posted 6/17/2011 7:56 AM (GMT 0)
I have the same questions as you hope someone can clear that up. First suspected chrons but colonoscopy/endoscopy and various blood tests have not turned out. Now my doc thinks its Lupus. Hope to hear from someone. I heard that Lupus can also cause GI symptoms but only heard that once.
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