Posted 6/20/2011 11:45 PM (GMT 0)
He He, this is just what I needed to read, and hey Sooper, thanks for the quote.
"I'm becoming less defined, as days go by. Fading away, well you might say im losing the focus. Kinda drifting into the abstract in terms of how I see myself."
I remember seeing them in concert when I was **healthy** in remission, and feeling so Strong and Well. What a good memory. Also, I used to work out, and that was one of my favorite workout songs to listen to.
Now I'm very old. OK, I'm actually 50, but physically I feel about 101 yrs old, can't move. I am at an OK weight now (after going UP with the pred, and down after doing scd for 8 weeks) This disease really messes with you on so many levels. I have to struggle so much to get the energy to get up and out the door to work, that I never bother to fix myself up much... sigh. I'm too exhausted. And even when I do fix myself up, it really doesn't work anymore! I don't have any mean people saying too much, though it really pisses me off when people say "but you look so well" . I don't look well, I look like hell. I have aged about a decade in the last 18 months. That's just in the looks department. In the physical feeling department, I have aged about 40 yrs, and can't even walk right anymore, due to arthritis and peripheral neuropathy. And this is BETTER than it was a year ago. Sorry, I'm ranting, but these posts really touched a cord with me. I'd better sign off, but glad I am not alone with this. (Guess I'm bitter.) But reading others and thinking about my own struggles in this area did make me laugh.
NDBC
Crohn's since 2000, in 2nd major flare, flaring since Dec 2009. Fistula, arthritis, peripheral neuropathy. On 6MP, Tacrolimus, Celebrex, Lyrica.