because you're all wonderful

Hello everyone,

 

This is just me, saying hello, because you have all made such a positive impact on my life. I want to know how you’re all doing – I need to come here more often to just ‘hang out’!

 

At the moment I’m doing pretty well… working more than I should, longer hours than I should, but overall I am happy. My boyfriend moved to another state so we could live together, and life is good, I love living with him. I still have weird days, where things go haywire, and my body is still largely a mystery to me (and my mind, for that matter), but I feel honoured to have even but a moment of remission, after the years of flaring. I get weird bruises for no reason, and cramps for no reason, but compared to the bad times I’ve had, I’m feeling good.

 

For all of you who are flaring, I hope you have some good support around you, and people who make you feel normal. Ivy, I think about you all the time.

 

I just wanted you to know I appreciate you all, and this place – its existence is a pure blessing.

 

Phoebe

Hi Phoebe!!!

So glad to hear you are doing so well. You really had been thru the ringer so its about time you had some good news. And your in love, could it get any better. Don't be such a stranger.

Hugs
Gail*Nanners*

Hey, Phoebe--you're wonderful, too! Like you, I often hang out here and take comfort in the knowledgeable, funny, sympathetic people who populate this forum. Happy to hear that things are looking up for you.

Ahh it is just so lovely to hear from you all. I am in love, and the first time I’ve been in love like this! I now know more what everybody’s talking about.

I looked back through my old posts yesterday, and found one where Frogelita was saying ‘one day you’ll be abscess / drain free and it will be a thing of the past’, and at that stage I couldn’t even imagine it. I don’t want to take this health for granted, because I know how fleeting it can all be.

I still appreciate being able to walk properly – this weekend we went for a hike in the mountains and I trekked like a crazy woman. I’ll never forget that liberating feeling of being able to walk again properly after having that abscess. It’s like I live with this simultaneous underlying fear and appreciation for my health. Fear that it might one day cause me pain again, but also such appreciation of this time that I have.