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Question regarding prednisone?

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Crohn's Disease
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Posted 7/28/2011 11:35 PM (GMT 0)
Hello..

I have not been diagnosed with Crohns..the doctor is not exactly sure what is wrong with me, yet I have had a colonoscopy etc.  My main issue was *C* but that seems to have away for the most part and replaced by the opposite! One of my other issues is the horrible noisy stomach after I eat, and I used to take simethicone sp? But the only thing that really works is prednisone...in fact I thing that is also the reason why the *C* has gone away as well. As long as I take prednisone daily, my belly is quiet and the *C* seems to stay away. There have been a few days I didn't take pred, and my stomach was horrible!

Does anyone with Crohns take prednisone?

Posted 7/29/2011 12:10 PM (GMT 0)
Hi Momto3
I just finished a prednisone taper two weeks ago. Most of us feel better on prednisone, but it is not a medicine you can stay on long term. The faster you can get off prednisone the better. How long have you been on prednisone? What dose are you taking? Perhaps you need to be on some kind of maintenance med.
Good luck.
Posted 7/29/2011 12:21 PM (GMT 0)
tons of people with crohn's do...i've unfortnately been on it for years on and off...mostly on...it's not good long term but it seems to be the only thing that works...once i taper to 10 mg or less i start to feel really bad so we're going to try humira every week...
Posted 7/29/2011 1:31 PM (GMT 0)
pred. I get C with higher dose, above 40. I'm on 10 right now and can't seem to get past that, when I try, the cd comes back in my throat.

AG
Posted 7/29/2011 1:44 PM (GMT 0)
HI MOM TO 3,
I also have 3 kids.... about the prednisone, although it has saved my life a few times, it has also almost killed me. I personally feel it is one of the worst possible drugs a person can take as there are SO MANY potential side effects. And like other members have already mentioned, It is best to take only short term. The higher the dose and the longer the dose you might run into complications like osteoporosis, diabetes, muscle weakness, opportunistic infections, thin skin, hair loss, emotional problems and much more.
about getting a correct diagnosis...lots of us had difficult journeys to get accurate diagnosis. Took almost 2 years for me..they never found anything on any x-rays, scopes, etc. At one point, I and my unborn baby (32 weeks gestation) were dying & emergency surgery was performed. Only then did they find a mass of Crohn's and abscesses. Keep pushing to get a correct diagnosis so you can be an the best medications.
Posted 7/29/2011 2:24 PM (GMT 0)
Hi Montana! Yes those kiddos! I'm actually on pred for my RA of all things at 10mg per day and only then did I discover after awhile of being on that my belly issues have felt so much better.  My husband said I really should go back to the GI and tell him this, but I have had every test known to man it seems, uppper and lower GI, colonoscopy and something else that I cannot remember but was of course normal.  I know my rhuemy is going to tell me at some point I have to stop the pred and I dread that day!!  Right now I feel like a normal human, well almost! I also take methotrexate at the max dose.  I do worry about the osteoporosis, because I was already diagnosed with that prior to the pred.  I agree it is an awful med, but it works wonders!

Cannynancy..I have been on the pred a good three months or more and I have a script for two more months and then I don't know if my rheumy will renew my script or not.  Since I take it for RA and not actually for the belly issues. I take 10mg, and there are some days that I try not to take it, especially if I don't have to go anywhere.  However, I find that I take it at least 5 out of 7 days per week.

I appreciate all of you and your input, I am sorry that you have to deal with this day in and day out.

Posted 7/29/2011 2:30 PM (GMT 0)
Pred really isn't a drug to take one day and not the next. I really think you need to get back in with your GI. Maybe they could have you try Entocort (less systemic steroid) for a bit while trying out other longer term meds. Hugs!
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