Intro and Remicade

I figure it's time I introduce myself here. I've been lurking on the Crohn's board since May, after I ended up in the ER with a badly inflamed part of my intestine. (I was stubborn, and waited entirely too long to go in...BIG mistake.) Since that time, I've been in a really bad flare, which has lead me to a new diagnosis and Remicade.

A *quick* history about me includes getting diagnosed with ulcerative colitis when I was 19. Now, at 24, I have been diagnosed with Crohn's (as of the May ER trip) due to the fact of the behavior and location of things. My last scope was August of last year, and my colon looked excellent.

It's all been very weird to say the least, but the Crohn's diagnosis makes a lot more sense. Two of my close cousins have CD as well, with one cousin being diagnosed with UC before CD, just like me. Plus how I've been feeling....it just makes sense.

Now, I began Remicade yesterday. It went well. I didn't grow another nose over night, and the infusion itself was just fine after I stopped shaking in that chair. =p I'm just hoping now that I don't get bad side effects everyone talks about. It scares me a little since I actually was one of those people who got pancreatitis from Lialda. =/ I'm trying not to think about things like that and I'm going to focus on getting better.

Anyway, just wanted all of you to know I'm here, reading, and occasionally posting. Mostly reading though.

I'm surprised I'm not tired. I was yesterday. I feel good though, because I wasn't up going to the bathroom all night like I have been all month.

I feel like I can finally eat something. YAY!

Hey there!!! Well i go for my 6th infusion on friday, and all has gone well up until now. Not sure if I just have alergies or reaction to the sun and remicade( some ppl can't go out in the sun while on remi) or something else. I have a slight face rash and it itches. It seems to come and go as it pleases. I go see my gi and see what my blood tests have to say, i hope that i am not reacting to the remi, cause it's worked for me..no million bathroom trips, no bleeding and no pain. Oh sure i have good days and bad days still but the good days are waaaaay more than the bad. I hope it works well for you!
Nice to meet you!

Hey there

All I can say is that when I was able to get remicade, it was heaven to me. I had no side effects and it worked absolutely perfectly, it made me feel normal for the first time in a long time.

I miss those days...

Another happy Remicade user here. I'll be going for my 5th in a couple weeks and boy is it great. Seems like everyone experiences it a little differently. For me, I get the infusion on Thursday mornings and wake up on Saturday mornings feeling fantastic.

I am another happy Remicade user. my gut is doing good, my fistula is gone and my fissure is now teeny tiny. I hope you get great results. Up until my 5th infusion I was always tired and had a bit of a headache the following day, but even that has dissappeared.
Good Luck & Welcome.
~Toni

Dear Just, Glad to hear you fell well day 2 after infusion. On day after infusion, I'm feeling tired and achey. Keep trying to remind myself that's common.

I love hearing from  folks in long term  remission. It gives  me hope.

Takilra, hope your rash is resolved soon.

Thanks for posting, All.