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Crohn's Disease
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Posted 7/31/2011 4:45 AM (GMT 0)
Whenever I have to go to the bathroom (a BM), it is a sudden and very painful feeling. I am literally hunched over in pain and have to walk that way because I can't even stand up straight. Sometimes the pain is so bad I can't catch my breath and it isn't until I have finally gone that I feel any relief of the pain. This happens when my BMs are formed, even if they are still pretty soft. When I'm in a full blown flare I just feel pain regardless.

My doctor says he sees no reason why I should be in such an extreme amount of pain and leaves it at that. I don't get it, am I going crazy or is this part of Crohns? Does anyone experience this? Is there anything I can do to help? It's quite embarrassing when I'm in public or at work.
Posted 7/31/2011 8:07 AM (GMT 0)
You're not crazy. At all. I've had this too, for years on end. Terrible, isn't it?

With me, the pain usually continued for a while after each bm, too. Oh, and I used to get sleepy before each bm, before the pain would hit: it was almost as if my body was preparing to deal with the pain.

I'm sorry your doctor is so clueless. He should come and live at your place for a few days, and see your symptoms for himself. I think a lot of doctors would benefit by doing that.

Ivy.
Posted 7/31/2011 1:45 PM (GMT 0)
Thank you Ivy! I agree with you about the Doctors, maybe they should follow us around for a few days and see what it's really like! Thank you again for responding, I've been going through this for years (since before I was diagnosed 11 years ago) and when the doctors tell me they can't find any reason for the pain it's incredibly frustrating to me.
Posted 7/31/2011 2:35 PM (GMT 0)
Yep, and it comes out of a clear blue sky. One minute your fine and then , wham ,,OMG , I hope there is a restroom in here and I hope its real close by. Nope your not alone .
Posted 7/31/2011 2:59 PM (GMT 0)
I am so sorry you are suffering so. Your doctors are poopheads for letting you suffer like that. Have you had any testing done lately? Maybe a updated CT Enterography or a small bowel follow thru might be needed to look for strictures.

Another thought is maybe you could try stool softners to help soften up your stools so they are not so painful. I suffer with more constipation than diarrhea, and I take them nightly in order to keep things softer and easier to pass. If I don't go one day I get really bad poop pains. Hope that helps and hugs!
Posted 7/31/2011 7:53 PM (GMT 0)
Would a CT Scan or Colonoscopy show strictures because I've had both within the last year.

I either have constipation or diarrhea usually, there isn't much of a happy medium with me. And I know about the missing a day of going, the pain is worse the longer I go without pooping.

I'm glad I'm not alone but on the other hand I'm bummed because I know how painful it is and not only do I not want the pain but I don't wish it on anyone else either! It's terrible! What stool softener works well for you Nanners? I've tried Myralax (forgot how it's spelled) and it did nothing for me even after a whole month of use, and that stuff isn't cheap to keep taking it. Do you have anything you recommend over the counter? Because my Doctor said I could try those. I had a prescription one once and it gave me the worst gas pains!

Thank goodness my boyfriend is so cool about all this. Talking about poop and gas and all that is a very comfortable conversation in our house.

Thanks again for all the replies, I'm glad I'm not totally crazy! But I honestly was starting to feel crazy because I kept getting told there was no reason for my pain.
Posted 8/1/2011 2:39 AM (GMT 0)
I get that way, not everyday, but in the morning, my first bm, if I'm not close to br. I could very easily crap right on the floor, but i make it and all I can do is WHEW, that was a close call.

AG
Posted 8/1/2011 3:45 AM (GMT 0)
I have thought the same thing. People, even docs sometimes, think just because we have stamina, we don't suffer as much as we do. My GI is pretty awesome, but sometimes I feel like I'm expected to be as tough as a superhero.

DC, is the pain from bowel spasms? I get those and they can be debilitating and make it hard to walk.
Posted 8/1/2011 3:59 AM (GMT 0)
Same for me. Dr. couldn't understand why I had such pain when his scopes showed less acute disease at that time. I also found that the spasms with the tiniest amounts of stool to sometimes be the worst. Gut wrenching was not a metaphor!

I don't know the answer to your other question but I want to say that with the proper meds, diet etc it will likely improve for you.

Post Edited (FunGuy) : 8/1/2011 9:48:21 PM (GMT-6)

Posted 8/1/2011 2:57 PM (GMT 0)
I take a generic form of Colace. I get it at my local pharmacy. I do have to take it nightly or else I am hurting. Good luck!

PS: Miralax is more of a gentle laxative, not a stool softner:)
Posted 8/1/2011 11:39 PM (GMT 0)
Roni - I don't know, I never thought of bowel spasms. I go from being fine to doubled over in pain and it's a pain that I know right then and there that I have to go to the bathroom. I never get the same pain with anything else. I guess I've just had it now for so many years that I'm used to it which is ridiculous.
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