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crohn and jointpain

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Crohn's Disease
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Posted 8/16/2011 5:48 PM (GMT 0)
Hi everyone

I have got psoriasisartritis as well as crohn and I know many of you also have jointpain as well as crohn.
There is someting I´ve been thinking about a lot. Most of the times when I have jointpain my crohn is a little bit better and the when it´s worsening my jointpain/inflamation get´s better? It´s like there can never be totally calm, somthing always have to be bad.

Am I alone with this experience?

"abroad"

rolleyes

Post Edited (this-to-shall-pass) : 8/16/2011 11:51:54 AM (GMT-6)

Posted 8/17/2011 12:37 PM (GMT 0)
I feel like that too. But I think its the body dealing with pain overload . I do know this much . I can say from experience that if you have a joint pain at work and you should slip up and hit your thumb and not the nail with a hammer , low and behold, no more joint pain for a while.
Posted 8/17/2011 1:47 PM (GMT 0)
Have you ever been referred to a rhuematologist for assessment? I have crohns/ colitis and RA so it seems a lot of us do suffer with other auto immune illnesses. I'm not saying you have RA but its worth a look at by a specialist if its causing you that much pain and discomfort. Best of luck and take care
Doreen
Posted 8/17/2011 9:23 PM (GMT 0)
Hi Andorable and Sniper.

Thanks :)

I´m going to a rheumatologist since around -95 for my psoriasisartritis wich is a form of RA. I´ve been on several medications and Humira has been working quit fine but i get pain now and then anyway ( even if my joints dont swell as much nowadays as before). But my inflamations seams to shift between my gut and my joints.

And sniper, of course it can be like your saying: one forgets/dont feel the joints when one has striken the thumb. It just feels so hopeless never really feeling absolutly well. It´s like it´s never ending and of cours it isn´t going to as the crohn is a chronic illness. I would just love to have some periods were I haven´t any inflammation at all. Wouldn´t you? :(

"abroad"
Posted 8/20/2011 4:32 PM (GMT 0)
I've also been feeling a lot of joint pain. My thumb joint and my neck especially. This is a first for me, and for the first time in two years that my crohn's has almost disappeared. Are there any vitamins that might help with the joint pain? Could it be a side affect from Azathioprine?
Posted 8/20/2011 4:59 PM (GMT 0)
Hi chiaalbita

Good to hear that your crohn almost has disappeared. Waiting to be able to say the same thing soon. I´m not on azathioprine because it gave me pancreatic pain so i dont now about that. I´ve read about magnesium for pain in joints and there are a lot of vitamin and hearbs but one can try. I´m very carefull and sceptic in taking things that aren´t realy tested. You can get a liverfailiur if your unlucky and I already have an autoimmun hepatitis so I´m not poshing my luck.

Hope there´s someone else here that can give you a better answer.

Best of luck!

"abroad"
Posted 8/21/2011 2:21 AM (GMT 0)
Are there any vitamins that might help with the joint pain?

One of the most popular supplements on this forum is vitamin D. It is not only effective for IBD/Crohn's but also helps ameliorate arthritis and fibromyalgia. Get your vitamin D levels check during your next blood work. Most find that their D levels are very low when first tested. (Google vitamin D and you will see that it is a panacea for almost everything from cancer to heart disease.)

Other supplements for chronic arthritis are fish oil (very popular here) and SAMe. For some reason these same supplements for arthritis are also known to be helpful for depression.

Boswellia and curcumin (turmeric) are natural herbal anti-inflammatories that can help relieve joint pain. You can also buy a good combination glucosamine/chondroitin/MSM capsule over-the-counter at any health food store or drug store. Believe it or not for some people they actually work. All three are synergistic with each other. There is also some indication that glucosamine may be helpful for IBD too.
Posted 8/31/2011 9:41 PM (GMT 0)
I get severe joint pain too but was diagnosed with fibromyalgia..one thing that makes my joint pain worse is when I am dehydrated, make sure you drink plenty if water...
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