HealingWell
Search Close Search
☰

How long before your Remi takes effect?

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/10/2011 5:11 PM (GMT 0)
 

How long after your periodic infusion do you feel positive effects from your Remicade?  It generally takes a week for me.  Last time (8 weeks ago) it didn't seem to work well for me at all.  I am hoping it is the extra stress at work, physical and mental, I am under. Meanwhile had another infusion 6 days ago and finally passed a semi-solid stool this morning.  I'm hopeful.

Posted 10/10/2011 8:29 PM (GMT 0)
It has been a long time since I took it, but I remember feeling the effects within a week also.
Posted 10/11/2011 2:42 AM (GMT 0)
Thanks. My GI person thought it should take just a couple of days to take effect and clearly I am just starting to feel better today a week after last tuesday's infusion. They have ordered me a prednisone course but I think I will hold off and see. I am hopeful to avoid prednisone. It messes with me mentally and physically.

Anyone else notice how long it takes for positive effects of Remicade??
Posted 10/11/2011 3:22 AM (GMT 0)
It has been a while but if I recall they gave me one and then another two weeks later . I was feeling better by the second one. Then they started one every eight weeks and by the time I was due again I was doing real well . Now they play out before the eighth week and I am glad to get them when time is up .
Posted 10/11/2011 3:55 AM (GMT 0)
it took me up to the 4th infusion for it to start doing something...then about a couple of days after each infusion i feel better, ( no bleeding anymore) but by the 7th week i know it's time to go again
Posted 10/11/2011 2:52 PM (GMT 0)
Thanks. I am on it for a year already so done loading. So Sniper for you it is just a couple days after the infusion you feel it?

TakilllRa, how long after your current infusions before you feel the effects? Seems to take me just about a week.
Posted 10/11/2011 4:12 PM (GMT 0)
Yep FG . I feel like crap the day after and sometimes the day after that and then it starts to kick in . Usually about two or three days and I'm feeling better .
Posted 10/11/2011 7:18 PM (GMT 0)
Sniper I wonder what it is that some folks feel the effects in two days and for me and others it seems to be a week. In any event I am feeling better today finally. I never seem to be 100% but I am not wondering how I will keep doing my job at this time. 5 years to retire and counting. My previous treatment didn't seem to kick in at all. Possibly because of the extra stress the job is putting on us lately (Post Office).
Posted 10/11/2011 7:48 PM (GMT 0)
Hi funguy

What other meds have you tried?
I had Remicade for my psoriasisartritis ( had my crohn then but undiagnosed still) and I had effect from it on the PsAs nearly right away. I felt the "fog" in my brain "drain of" and after a day or two I felt less pain in my joints. Unfortunally my CD didn´t react on it at all. HAd to stop taking Remicade because it triggered my liver into a autoimmune hepatitis rolleyes
But after treaten that with preds mad ( terrible medication but sometimes needed) I were put on Humira insted.
They say that if you don´t get the respons you need on Remicade sometimes Humira is better and likewise. That´s why I ask you.

Being so close to your retierment it´s not easy but in my case I had to change jobs to awoid the tremendus stress I was in working there then.

Take care! :-)
Posted 10/11/2011 7:58 PM (GMT 0)
It's usually a couple days. I get mine every 6 weeks as 8 weeks wasn't cutting it (I hope that's not a sign that I will wear out of this med soon) But I am doing pretty well on it and feel normal most days now. :)
Posted 10/11/2011 8:14 PM (GMT 0)
It was instant for me.

I started taking Remicade the last week of July this year. I'm halfway through my first 8 week stretch of time...still feeling good.

While it was instant for me (that day of the first infusion I felt a lot better...mind over matter??!?!) it "wore off" after a week or so and I was absolutely ready to get my second loading dose. After that, I basically hit remission. Woke up the next morning and felt like a million bucks.

I still have some break through symptoms, but that's only when I'm really stressed or I eat ice cream and other 'no list' foods.
Posted 10/12/2011 2:28 AM (GMT 0)
Thanks for your responses. I have tried most everything. I am improving yesterday and today. Can't say why it didn't seem to work 8 weeks ago. Bad dose? stress? I only hope that the improvement these last two days continues. I am on every 7 weeks now.
I
f it was a narcotic I would think somebody stole my meds and substituted saline....

Been on all the asacol, pentasa, rowasa, prednisone, flagyl, cortenema, immuran, sulfasalizine.........................If this quits I will be in deep D.
Posted 10/12/2011 3:53 AM (GMT 0)
OK , so I was going to make a postal joke about why it takes so long for it to work for you , but , I'll just say , I don't know why its faster for some . I will tell you that I understand the job stress and as you already know , it's h--- on crohns . Hope the remicade does the trick for you and you can hang in there till retirement .
✚ New Topic ✚ Reply