HealingWell
Search Close Search
☰

Fatigue - fed up with it!!!

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/25/2011 11:03 AM (GMT 0)
I really got fed up with fatigue. What else can be done to combat it? I take B injections every other day (6 injections so far and will continue other 6), folic acid, and 2 multivitamins and sometimes Ensure. I started to eat meat though my intestines do not like it but my doc told me that I do need it.I do restrict my food as any high fibers cause me a flare up. Today, I woke up with severe fatigue and could not go to work. What else can be done?
Waiting for your advice.
Thank you
_________________________
Current meds: Pred (7.5 mg, can't go lower), Pentasa tablets 2g, enema cort before bedtime, Methotrexate inj 25 mg/week, Nexuim 80, anti-ulcer med x 3, now for a flare up: Tavanic 500, Orindazole 1500 mg, in addition to Folic acid, B injections, multivitamins, Ensure.
No veggies or fruits.
Can't tolerate probiotics.
Posted 10/25/2011 2:11 PM (GMT 0)
Have you had any blood tests to check for anemia? Thats all I can think of.

I have fatigue too as well as most of us Crohnies. It just seems to be part and parcel of having this darn disease. Hugs, we do understand.

Hugs!
Posted 10/25/2011 3:20 PM (GMT 0)
minnie, I wish I knew. My iron was 16 last time, b12 closer to 300, and I'm tired all the time. I feel like my brain is foggy sometimes too. I'm trying to increase my iron.
For me, I think it's also partly imuran and metoprolol.

Could it partly be your MTX?
Posted 10/25/2011 4:43 PM (GMT 0)
Fatigue is one of my major whines!! I wish I knew what to say or do to help. All I can do is sympathize!!
Posted 10/25/2011 6:11 PM (GMT 0)
Dear all,
Thank you very much. Knowing that I'm not the sole person who suffers from fatigue, relieves me. Many times when I post to this forum, I think that I'm alone but when i find that there are other sufferers as well gives me the incentive to cope and pray for all of us that hopefully there could be a solution for fatigue and our darn disease.
Take care!
Posted 10/25/2011 9:35 PM (GMT 0)
I have an Energizer Bunny for a husband, so anything short of a moving constantly and I feel a bit inferior. I know I do pretty well, all things considered, but I am TIRED, all the time. I push myself to get things accomplished every day. Its a good feeling at the end of the day when I know I have crossed a few things off my list, not everything, but some. But after a few days of moving at hubby's pace, I will have to have a day of rest and take it easy. Good thing for me that Monday's come around once a week. turn

I do think that it is part of the disease and part age. I know I had more energy 15 years ago, but I have had this DD for decades, so age has to play some part too. Also, except for my most recent set back, the last 10 years have been some of my healthier years, yet I am still fatigued.
Posted 10/25/2011 11:37 PM (GMT 0)
I deal with my Crohn's Disease and my fatigue constantly...I am sick and tired of being sick and Tired all the time....Just working everyday takes its toll big time.I take onesource multi vitamin.l-arginine,and crystal light that I put in my bottled water....It works for energy and has B-12 in it,,with little bit of caffiene,,,not much.And it seems to help me get through the day.....Currently I m taking nothing for my crohns,,I m trying to wing it.
Posted 10/25/2011 11:43 PM (GMT 0)
I think that part of it is just convincing yourself to get up and get going...sometimes that seems to help for me. It's that first hurdle haha.

Otherwise, I try to eat a big breakfast to help provide more energy (lots and lots of protein!!). I also try to rest a lot. Take short breaks throughout the day. Just 5 or 10 minutes can help so much.
Posted 10/25/2011 11:49 PM (GMT 0)
I've learned how to beat fatigue...I exercise regularly and I've been in a continuous flare my entire 20 yrs of having CD and am still able to exercise regularly, when CD gets a little rougher (which honestly doesn't really happen anymore since I incorporated exercise as part of my lifestyle) I adjust to how I'm feeling (like during that time of the month, I'll do more stretching and walk the eliptical rather than run it, but still do weights and stomach crunches which means no more period cramps) so there's always room for exercising regularly, it aids with bowel function, and may very well keep osteo, fibro and other CD related issues at bay (I don't suffer any of those and I credit regular exercising to that). It's especially amazing for the mind and emotions as well, a great way to combat depression (which I had quite severely but chose not to take drugs for it) and gives back loads of energy.
Posted 10/26/2011 8:27 AM (GMT 0)
I wish I knew too!! Regardless of if I'm in a flare or not, I always have fatigue. I think some people just think I'm lazy. :( But I'm always super tired, in need of a nap. No energy. It stinks. Wish I had some advice, but you're not alone!
Posted 10/26/2011 10:26 AM (GMT 0)
my fatigue is due to underweight and anemia from pred.

AG
Posted 10/26/2011 1:02 PM (GMT 0)
I have to agree with a number of replies on this thread. I am also tired ALL the time.
I recently had surgery to fix number of problems (April), and now that I am 6 months post-op,
I was hoping my energy would start to increase. Now I know I need to exercise more than
I do, but honestly - yesterday I felt like I had narcolepsy!

I have anemia, so I know that doesn't help, but it seems like there are days where I am dragging
myself around even after 8 or 9 hours of sleep - it doesn't make sense. Insomnia doesn't help - lol.

I am fortunate enough to not have to work, so I hunker down on the bad days and take naps.

No solutions, just empathy for all of us...

Sudsmom
Posted 10/27/2011 2:48 AM (GMT 0)
I had same problem with fatigue, and doctor checked my thyroid. It wasn't working anymore due to malabsorbtion and being underweight. I am also anemic. But once he got my dosage of synthroid down...i noticed a huge improvement in the fatigue.

So, maybe something for you to try, only a simple blood test. I know how frustrating it is to "want" to get things done, but so tired that getting up off the couch is a major event!

Hope you feel better soon. Kathy
Posted 10/27/2011 3:29 AM (GMT 0)
i get so tired i can't keep my eyes open- it's bad...i feel like i could fall asleep driving ...i fell asleep on the can at work for 5 minutes yesterday before i kind of did one of those jerky things and woke myself up...that happens a lot- i'm almost asleep and then my body jerks itself awake...that would have been hilarious- falling asleep in the bathroom at work for an extended period of time. godd help me! haha
Posted 10/27/2011 4:06 AM (GMT 0)
omg Mtgman!  Thats funny, well not funny....but ya know.  I have too done that once.  Some say they spend so much time in the can they take their pillow.  But that might look funny for you at work.  ha ha thanks for the laugh, its good medicine for all of us.  Kathy

 

Posted 10/28/2011 1:09 AM (GMT 0)
I am tired all the time also, this has been since 1 1/2 years now, hostly still hoping my energy will return, I also feel Humira is also a cause of it. Hugs!

Vicki
Posted 10/29/2011 12:49 PM (GMT 0)
If I don't get a nap during the day, I start falling asleep in class/while watching tv/etc. I basically feel like a zombie.

Things to get checked if you have fatigue:
iron (hemoglobin, ferritin)
vit B12
vit D
thyroid
cortisol for adrenal function*

*I've had all of these tests done. In fact, my B12 and ferritin are above normal, vit D is normal after taking mega-doses a couple of times and then taking 2000IU daily, and thyroid markers are normal. My GI sent me to an endocrinologist b/c of my fatigue and non-specific symptoms. Now I'm being tested for adrenal insufficiency.
Posted 10/29/2011 3:10 PM (GMT 0)
Dear all thank you very much for replies.Yes, everyday passes, I hate this fatigue more. When I have work to do or a family committment, I push myself to do it. But after I finish the task and sit down to rest, I feel severe pain all over my body. Sometimes, I feel I'm a schezophrenic. In the morning I wake up, select thoroughly my outfit, wear make up so that nobody notices that I am not well and go to work. In the afternoon when I return, I'm really tired, go to bed and sometimes burst into tears because of aches. I'm trying to cope as hard as possible. But would life last like that?
Likani mentinoned that I should eat vegetables and fruits. I can't tolerate any high fibers. My doc keeps convincing me to eat them but I refuse.What do you do?
Thank you.
Take care!
Posted 10/29/2011 8:20 PM (GMT 0)
I hear you, this is a horrible disease that we live with each day. We know what you are going through and can sympthise with you. Hugs to you and hope for a better day tomorrow.

Vicki
Posted 10/29/2011 10:07 PM (GMT 0)
Thank you Vicki,
It's the support and sympathy that one finds here at this forum that keeps one going. Whenever I feel desperate and my family cannot understand what I go through, I access the forum, read other fellow crohnies' posts or send a new one and find relief.
(((Hugs)))
✚ New Topic ✚ Reply