So nauseated & full all the time; Crohn's worsening.

These past 2 weeks have been heck. I've been back and forth between ER visits, classes and doctor's appointments and I'm just plain exhauseted. I'm tired of getting 4 hours of sleep a day, studying up late in the bathroom only to make mediocre grades. For some reason I've been throwing various pity parties a day and just cry at a drop of the hat which is abnormal me. I'm trying to decide if it's from birth control pills or the prednisone. I usually live by the rule "Suck it up buttercup." The pain has been too much in my upper abdomen/lower abdomen . The weather isn't helping the joint issues either.

  I have been so nauseated lately and I think that food is sitting in my stomach for way too long. This afternoon I was still having reflux and spitting up my dinner from the night before. I've been trying to eat through the pain so I don't lose weight but it's not worth it anymore. What do you eat when you have to that doesn't make you so nauseated/throw up? Or should I jus not eat at all when I'm this full?(literally food just sits in my stomach for HOURS it seems).

   I leave tomorrow to get admitted into the hospital to try Humira and maybe Imuran too. I'm imfamous for allergic reactions/not responding to treatments so my GI wants to keep an eye on me for a few days and monitor my flare. Hope this will help. Till then, what helps you Crohnies that have the disease in the upper GI with the nausea/poor appettite?

The Pity Parties are from the pred, but you have some depression issues going on (pred is like booze it brings up stuff that is already there). I think you should talk to your doctors about this next time you see one.
<<<HUG>>>>

Matthew

@Chiba: First off, welcome!! My GI is very good and doesn't over-do it on medicine. He isn't a big believer on overloading pediatric Crohn's patients with medicines but does know that people like myself need agressive treatment. He's one of the top internist/GI specialists in the country and I couldn't ask for anything better. He even visited me in the hospital on his off days! He has many children, works at the top Children's hospital in the state and his own office. That speaks loads of his charchter.

If you read my previous posts, he's actually the one that reccomended the vitamin supplements and probiotics so he's open to things outside of the medical realm. I do have malabsoprtion issues, am tapering steroids and have had some bleedin from the rectum so that's probably causing the fatigue. I love epsom salt baths! I do them every so often when I'm feeling like crud. I've tried all natural routes and it simply doesn't work for me but it helps some. I am steroid refractory so steroids don't work for me :/ Only at impossibly high doses so I'm dealing with the side affects with no benefits...I'm a hard case. I'll try some of your reccomendations that I haven't already tried. Thanks!


Anyways, My GI is worried again....I told him about the decreased appetite, acid reflux getting worse etc. He said that he too believes I have a slow GI system which contradicts what I usually have(constant diarrhea) and he wants to find out the cause ASAP because he has to find a treatment that will work for me and not make my other autoimmune conditions worse. So I'm doing a stomach emptying test this week I think. He said until then I need to load up on some antacids and zofran if needed because I don't need to get more malnourished. Tsitodawg, my GI pretty much used the same description you gave me :) Thanks for the reassurance so I could finally bring it up to the GI(I hate asking for help...)

Thank you Tootsie! Forgot about the possibility of the pyloris being shut from inflammation. Since the Crohn's affects my stomach too and it was pretty inflamed last upper scope that makes sense! The nasty burps and reflux is embarassing/just down right disgusting. I hope your pyloris stops giving you heck so you can at least try to have a semi-normal relationship with food(as far as your upper GI goes) =]

GI is working on getting the test done in my town so I don't have to travel out of town to see the GI and have him do it. Will post results once I have the test done(hopefully next week!).

Thank you blacky! No one really wants to deall with my disease either down here so I travel out of town to see the specialist. You gotta do what you have to do, right? Especially, since you have three girls who need their mommy. Not too many people with Cron's affecting their upper intestines/GI tract moderately/severely so any chance I get to talk to someone else who knows the feeling is a great relief emotionally.

I hope that ulcer quits bleeding and the GP helped you today in terms of getting relief and getting the issue fixed?

I've never tried Nexium and now that I think about it, I don't see Nexium mentioned kmuch either. If Nexium doesn't work for you Prilosec is deffinately worth a try! I'd be completely miserable without it.

Nexium causes dry mouth while Prilosec does not. Nexium is also generally prescribed for short term while Prilosec is prescribed more for patients that will probably need it long-term. I've taken prilosec daily since April of 2011.

Hope I helped!